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Community Advocates

In order to stay up to date on latest treatments, drug discovery, clinical studies and how to manage endometriosis very day, brings you frequent articles, points of view and advice from leading patient advocates and experts.

Jessica Barnack-Tavaris

Jessica is a psychology professor who studies the psychosocial aspects of reproductive and sexual health. She earned her PhD in Experimental Social/Health Psychology and a Master’s Degree in Public Health. Her current interest areas include attitudes toward menstruation, menstrual stigma, infertility, and the transition from infertility to motherhood. Read more.

Alene Brennan

Alene Brennan overcame decades of health challenges and multiple autoimmune diseases – including endometriosis – through integrative healing. The experience of seeing just how powerful – and empowering – diet and lifestyle can be, changed the course of her health, life and career. Alene pursued the field professionally and now serves as a Nutrition Coach supporting others with migraines and autoimmune disease. She takes a “Less Pharm, More Table” approach to manage health. Read more.

Joanie Cox-Henry

Joanie Cox-Henry is a journalist and endo warrior who resides in Boca Raton, Florida. With more than 17 years of experience as a professional writer, Joanie has interviewed everyone from Jack Black, Kelly Osbourne and Joan Jett to Matt Damon, Adam Sandler, and Donald and Melania Trump. She regularly contributes to Endometriosis Foundation of America’s blog, The Blossom, Today Parenting, South Florida Parenting magazine, Delray Newspaper and many others including publishing her own parenting blog, Read more.

Kimberli Davino

Kimberli is a 30 something year old living with her husband and two fur babies by the beach. For as long as she can remember, she has struggled with health issues. The worry of ‘maybe I am just crazy’ crossed her mind numerous times, after leaving doctors’ offices with no answers. It was not until March of 2017 where she received the news “You do indeed have endometriosis”. It angered her that something she researched for so long, trying to get doctors to look at, went unnoticed for years. Read more.

Leanne Donaldson

Leanne lives in Kentucky where she writes about living well with chronic illness on her blog, Smiles and Sundays. Diagnosed with endometriosis in her 20’s, she has since been blessed with 3 children who keep her very busy. Read more.

Jessica Duffin

Jessica Duffin is a podcaster, writer and founder of This Endo Life. Endometriosis robbed Jessica of her education, business and two careers. Throughout her life, she had endured a constant pattern of fatigue and burnout, eventually having to walk away from each chapter of her life, exhausted and assuming she too weak for the path she had chosen. Read more.

Fela M’tima Dunfee

Fela M’tima Dunfee is a writer and artist living in Chicago, IL. She was diagnosed at age 23 with Stage 4 Endometriosis. The disease had already spread to almost every organ and up to her diaphragm. Through being bed bound because of surgeries, trouble breathing, and chronic nerve pain in her right arm, she felt completely incapacitated. Read more.

Meredith East-Powell

Meredith is the creator of where she writes about her experiences with endometriosis and IBS, shares healthy recipes and self care tips. Meredith is a yoga teacher and studying a bachelor degree in Health Science, Nutrition. Read more.

Janet Geddis

Janet Geddis, also known as The Migraine Girl, is a business owner as well as a longtime migraine patient advocate and essayist at She recently began writing for as well. In addition to writing about her struggles with chronic disease, Janet is a health consultant and professional speaker. Read more.

Erin Glace

Erin Glace, MSPT, PRPC, BCB-PMD. Erin is the clinical director of the Physical Therapy and Urodynamics departments at Urology of Virginia. She is a graduate of the University of Florida with her bachelor’s degree in Physical Therapy and a graduate of Old Dominion University with an advanced master’s degree in Physical Therapy. Her sole focus of treatment is pelvic floor dysfunction and she has worked with the doctors at Urology of Virginia since 2000. Read more.

Shireen Hand

Shireen has lived with endometriosis since the age of 12. Now in her 30’s, unable to work due to her health, Shireen juggles daily life and motherhood with writing over at EMLWY (Endometriosis: My Life With You). Read more.

Laura Kiesel

Laura Kiesel is a freelance writer/journalist living in the Boston area. She has written for many well-known media outlets including The Guardian, The Atlantic, Salon, Healthline, Headspace, Harvard Health blog and others. Read more.

Christina (Endo Warrior) Koch

Christina Koch (Endo Warrior) spent 16 years of her life enduring crippling menstrual pain with various doctors telling her that this was normal. After suffering a miscarriage at the age of 28, she developed abdominal pain which resulted in a laparoscopy. Read more.

Liz Lebowitz

Elizabeth R. Lebowitz is a Registered Nurse for over forty years. She has worked in busy metropolitan Medical Centers in a variety of Nursing and Administrative positions. Her professional career began as a staff nurse, went on to be a Nurse Recruiter and Employment Manager of a large city hospital, to more recent position as the Lead School Nurse for a Long Island School District. Read more.

Jessie Madrigal

Jessie Madrigal is a writer based in the UK. Her first period came with a bang and a prolonged hospital stay. She spent years seeking answers from doctors, who performed every single test possible, concluding each time that it was “probably stress”. It was only until her thirties that a friend with endometriosis mentioned how their symptoms sounded very similar. Read more.

Chris Robson

Chris lives in southeast England with his partner who has endometriosis. They manage the condition as a team, support each other through its challenges, and work together to find ways to improve its symptoms. Read more.

Lia Rone

Lia spent 14 years with misdiagnosed pain caused by Endometriosis. After seeing commercials on TV and reading about symptoms in magazines and online articles, she decided to ask her doctor about the possibility of being an endometriosis patient. Read more.

Skye Scarbrough

I am a mum, stepmum, passionate wholefood cook and nutritionist. I am Australian, but have been living in Santiago, Chile for the last decade. I speak English and Spanish. Through my studies I have experience in integrative, human and public health nutrition. I currently work in private practice, mainly with women. My practice focuses on preconception, infertility, pregnancy and post-natal nutrition and health support. Read more.

Keri Wiginton

Keri is a journalist who focuses on mental health and women’s wellness. Keri, now in her 30s, was surgically diagnosed with endometriosis when she was 24, more than a decade after her period pain started. Despite trying hormonal treatment and undergoing two laparoscopic surgeries, her endometriosis persists. Read more.

Amanda Workman

Amanda Workman is a wife, step-mom to four young adults, and a dog mom to two dogs in South Texas. Her experiences with endometriosis started when she was only 14 years old. When her symptoms started, it was during a time period that doctors did not believe somebody so young could even have Endometriosis. Read more.

Former advocates

Andrea Gray

Andrea is 38 and lives in Lubbock, Texas. Andrea was diagnosed with stage 4 endometriosis at the age of 20. She has dealt with this disease her entire adult life and wants to share with others how she has coped (sometimes poorly) and what treatments she’s tried. Read more.

Thelma Griffin

At the age of 31 and childless, Thelma began having abdominal pains much worse than those during her menstrual cycle. Her OB/GYN’s examination revealed a mass and surgery was scheduled. At each consecutive checkup, the mass had grown just as Thelma’s fears had. Read more.

Maisha Z. Johnson

Maisha Z. Johnson is an award-winning writer who believes in honoring each person’s unique path to healing. She has worked with survivors of domestic violence and sexual violence in the Bay Area. Read more.

Regular contributors and moderators at are offered compensation for their contributions to the community. If you are interested in joining our team, please contact us at [email protected].