So It Goes: A Journey of Pain, Isolation and Hope...I’m 26 years old when I wake in the middle of the night to a knife-sharp pain radiating from both sides of my lower stomach, down my legs, and around...Reactions0reactionsComments1 comments
Is this endo??...1. Pain getting triggered because of periods(starts between 3-5th day) which lasts for between 12-26 days 2. Lower abdomen+pelvic(in the middle + left side) (more on the pelvic region) 3...Reactions0reactionsComments1 repliesSymptoms
Bowel issues and endo ...Does anyone suffer chronic with bowel flare ups of pain, constipation, loose stools and extreme cramping? This is something I have suffered with along side my endo and I do...Reactions0reactionsComments3 repliesSymptomsCopingDiagnosis
Possible endo.. thoughts/advice?...So I’ve had two kids. One in 2022 and the other this year in January. They’re 17 months apart. I got pregnant easily with both of them. I was on...Reactions0reactionsComments1 repliesSymptomsTips & AdvicePelvic Pain
How to Make Your Own Heating Pad...One of my go-to tools for managing my flares is my heating pad. Heating pads are excellent for healing muscle aches and pains. Did you know you can make your...Reactions0reactionsComments0 comments
Pelvic pain and identity research survey...Hi, I'm Lisa and I'm a PhD student studying chronic pelvic pain and identity at the University of Buckingham through an anonymous online survey. The survey, which takes around 20...Reactions0reactionsComments0 repliesResearch & Clinical TrialsPelvic PainMental Health
Healthcare providers in Seattle...Hello! I’m looking for a specialist who treats endometriosis in Seattle. Very frustrated with doctors who only prescribe birth control without listening to my concerns. I’m in pain and can’t...Reactions0reactionsComments1 repliesHealthcare TeamDiagnosis
Endo & dizziness...Has anyone experienced dizziness or a floaty feeling from their endo? They suspect I have endo (I have a lap next week) due to intermittent pain, but I feel like...Reactions0reactionsComments1 repliesSymptoms
Frozen Pelvis...I was diagnosed with a frozen pelvis in January 2024. I had surgery for a colostomy,because of severe bowel obstruction and at the same time my oncologist was going to...Reactions0reactionsComments5 repliesSurgery
Charlie horses...This month the day prior to my period starting I had the WORST Charlie horses in my legs and groin area. 3 days in and my legs are still really...Reactions0reactionsComments1 repliesTips & Advice
Nutrition and Endometriosis Study...Hello all! I am currently conducting a pilot study: Investigating the Nutritional Habits of Individuals with Endometriosis. I have a few spaces left and am recruiting participants who have been...Reactions0reactionsComments1 repliesResearch & Clinical Trials
Possible endometriosis ...Hi all, I am new to this forum. I’m a 34 year old woman who has always had very painful periods to the extent of passing out and throwing up...Reactions0reactionsComments3 repliesDiagnosis
Avoiding Endo Flares While Traveling Aboard...Traveling can be an exhilarating experience, but for individuals living with chronic conditions, like endometriosis, careful planning and consideration are crucial. My partner, who has endometriosis, and I are currently...Reactions0reactionsComments0 comments
Post menopausal and diagnosed with a 3.2 cm endometrioma on my ovary. Should I be worried?...So the background is, I went to urgent care back in March with stomach pains. Doctor thought it was a ruptured appendix, but sent me for a CT scan to...Reactions0reactionsComments5 repliesLaparoscopy
After Period Cramps...I’m having the worst after period cramps the last couple of days. I ended my period Wednesday, and it’s now Sunday. I’m having the worst sharp pain in the area...Reactions0reactionsComments1 repliesMedical MarijuanaSymptomsTips & Advice
I'm apparently an Intersex anomaly....Howdy there, my name's Zano. I'm intersex with a condition known as ovotestis (that's when your gonads are half male half female), and since at least my 30th birthday I've...Reactions0reactionsComments2 repliesDiagnosisAwarenessInsurance & Disability
Diet and Lifestyle Changes That Make Working with Endo Easier...Endometriosis is a condition that affects many women with symptoms such as pain, mood swings, and fatigue. Endometriosis has no cure. We call it chronic because it can last for...Reactions0reactionsComments0 comments
Desperate...Hello, I like so so many of you feel like I am stuck in a loop and completely helpless and not sure what to do at this stage. I was...Reactions0reactionsComments1 replies
Endometriosis ...Hello everyone, I just wanted to share my story and get some advice maybe at the same time. I just turned 37 and I have always had excruciating pain during...Reactions0reactionsComments3 repliesSymptomsLaparoscopyFlaresRecurrence
I Am More than My Disability...Hi everyone and all the warriors. I applied for disability 2 1/2 years ago due to my stage four endometriosis. I am 33 years old. I have significant endometriosis history...Reactions0reactionsComments4 comments
