Reaction to Deep Endometroisis Diagnoses...Hello! I had surgery yesterday and was diagnosed with deep endometriosis (the consultant said they don't use the stage system anymore but basically it was a sever case). When I...reactions1replyDiagnosisCoping
Ovary stuck to the back of womb...Hi, I've been having trouble with my periods for a long time but more so the past 3 years. I have had polyps removed around 4 years ago which made...reactions1replyCopingPelvic PainEndo Belly
Finding Pleasure When Orgasms Hurt...If you have endometriosis, penetrative sex may feel uncomfortable. Many people living with endometriosis explore different forms of intimacy, like cunnilingus or masturbation. But what can you do when orgasms...reactionscomments
Endometriosis ...Hi I just wanted to ask for some advice, I am a 24 year old female & for around 5 years now I have suffered from what I THINK is...reactions1replyDepressionCopingDiagnosis
Frozen pelvis...I just had surgery for a bladder sling and hysterectomy and vaginally lift. I had previously had surgery whenmi was 28 to remove a left ovary and part of my...reactions1replyDiagnosisLaparoscopySurgeryHysterectomy
Endometriosis ...Hi ladies I'm new to the,group after suffering for years,I finally got diagnosed 2 weeks,ago after needing surgery to remove a 4cm endemetroma. I was wondering if anyone experiences excruciating...reactions1replyCoping
What are some tips for managing endo pain?!...I am in severe pain quite frequently. I am prescribed and taking MyFembree but doesn’t even touch the pain. The next step is surgery to look for it but I...reactions4repliesTreatment
I Scream into the Void and Nobody Hears...I am not yet 20. I have had painful periods since I started menstruating. I've been in so much pain that I've vomited and fainted. I keep asking doctors for...reactionscomments
Mirena coil for endo ...Has anyone had the mirena coil specifically for their endometriosis? What was your experience? Weight gain, a new, anxiety etc?...reactions5repliesTreatment
Have you tried a massage gun?...So I am lying on the sofa currently typing this with a massage gun on high pummelling away at my ovaries. Let me explain! I have been swimming recently and...reactions1replyTips & Advice
Impact of Endometriosis Study Seeing Participants...Hello! I'm studying the impact endometriosis has on the lives of individuals with the disease, as well as their experiences with medical care. My interest stems from knowing several women...reactions7repliesResearch & Clinical Trials
Diagnostic LAP - no diagnosis...Hi all, Wondering if anyone has ever experienced this. I had a diagnostic LAP today that was scheduled due to 7 years of great pain and doctor visits, most pushing...reactions2repliesDiagnosisSurgery
Interesting interview with Shannon Cohn (Below the Belt)...I found an interesting interview with Shannon Cohn - the author of the documentary Below the Belt: https://www.youtube.com/watch?v=S2rNECma7Mk...reactions1replyAwareness
Calcium-D-Glucarate & DIM...Has anyone ever used Calcium-D-Glucarate in association with DIM (Diindolylmethane) therapy for endometriosis? From what I have read, DIM together with Calcium d-glucarate helps to balance the sex hormones -...reactions5repliesHealthcare TeamTreatment
Request for Proof of Pain Related to Endometriosis for Social Security Scotland...I am writing to seek your assistance in providing documentation to help substantiate my application to Social Security Scotland, particularly regarding the painful nature of endometriosis. Despite being diagnosed with...reactions4repliesAwareness
Letting Go of Perfection on My Fertility Journey...I've always considered myself a pretty organized person. As a kid, getting new binders for school was like a little slice of heaven for me. As an adult, I get...reactionscomments
Anxiety and it’s side effects...My relationship with anxiety started in my 40 s all of a sudden when my body went into an overdrive mode.It started with my mum’s illness and then one day...reactions1replyMental Health
Has anyone taken Pause tablet for pain and bleeding...I wanted to know since my gynaec gave that to me this time saying it’s one less medicine but I have this question now what do I do when I...reactions5repliesTreatmentSide Effects
I suffer from bad anxiety during my ob gyn visits and my bp spikes badly and with that my heart rate...I really don’t know how to handle this ,I have tried meditating,box breathing before sessions,plus try compiling my thoughts into points but when the time comes I find am shaking...reactions3repliesMental Health
Reoccurrence at age 75...In 1981 at the age of 32 I had a total abdominal hysterectomy due to endometriosis. At that time my GYN put me on Premarin. In 2009 I developed painful...reactions3repliesRecurrence
