When Surgery Isn't Life-Changing...In December of 2023, I had a life-changing surgery that did not change my life. I woke up in the hospital bed with my legs shaking uncontrollably from the many...reactions1comment
So It Goes: A Journey of Pain, Isolation and Hope...I’m 26 years old when I wake in the middle of the night to a knife-sharp pain radiating from both sides of my lower stomach, down my legs, and around...reactions2comments
Is this endo??...1. Pain getting triggered because of periods(starts between 3-5th day) which lasts for between 12-26 days 2. Lower abdomen+pelvic(in the middle + left side) (more on the pelvic region) 3...reactions1replySymptoms
Bowel issues and endo ...Does anyone suffer chronic with bowel flare ups of pain, constipation, loose stools and extreme cramping? This is something I have suffered with along side my endo and I do...reactions3repliesDiagnosisSymptomsCoping
Possible endo.. thoughts/advice?...So I’ve had two kids. One in 2022 and the other this year in January. They’re 17 months apart. I got pregnant easily with both of them. I was on...reactions1replySymptomsPelvic PainTips & Advice
How to Make Your Own Heating Pad...One of my go-to tools for managing my flares is my heating pad. Heating pads are excellent for healing muscle aches and pains. Did you know you can make your...reactionscomments
Pelvic pain and identity research survey...Hi, I'm Lisa and I'm a PhD student studying chronic pelvic pain and identity at the University of Buckingham through an anonymous online survey. The survey, which takes around 20...reactionsrepliesResearch & Clinical TrialsPelvic PainMental Health
Healthcare providers in Seattle...Hello! I’m looking for a specialist who treats endometriosis in Seattle. Very frustrated with doctors who only prescribe birth control without listening to my concerns. I’m in pain and can’t...reactions1replyHealthcare TeamDiagnosis
Endo & dizziness...Has anyone experienced dizziness or a floaty feeling from their endo? They suspect I have endo (I have a lap next week) due to intermittent pain, but I feel like...reactions1replySymptoms
Frozen Pelvis...I was diagnosed with a frozen pelvis in January 2024. I had surgery for a colostomy,because of severe bowel obstruction and at the same time my oncologist was going to...reactions5repliesSurgery
Charlie horses...This month the day prior to my period starting I had the WORST Charlie horses in my legs and groin area. 3 days in and my legs are still really...reactions1replyTips & Advice
Nutrition and Endometriosis Study...Hello all! I am currently conducting a pilot study: Investigating the Nutritional Habits of Individuals with Endometriosis. I have a few spaces left and am recruiting participants who have been...reactions1replyResearch & Clinical Trials
Possible endometriosis ...Hi all, I am new to this forum. I’m a 34 year old woman who has always had very painful periods to the extent of passing out and throwing up...reactions3repliesDiagnosis
Avoiding Endo Flares While Traveling Aboard...Traveling can be an exhilarating experience, but for individuals living with chronic conditions, like endometriosis, careful planning and consideration are crucial. My partner, who has endometriosis, and I are currently...reactionscomments
Post menopausal and diagnosed with a 3.2 cm endometrioma on my ovary. Should I be worried?...So the background is, I went to urgent care back in March with stomach pains. Doctor thought it was a ruptured appendix, but sent me for a CT scan to...reactions5repliesLaparoscopy
After Period Cramps...I’m having the worst after period cramps the last couple of days. I ended my period Wednesday, and it’s now Sunday. I’m having the worst sharp pain in the area...reactions1replySymptomsTips & AdviceMedical Marijuana
I'm apparently an Intersex anomaly....Howdy there, my name's Zano. I'm intersex with a condition known as ovotestis (that's when your gonads are half male half female), and since at least my 30th birthday I've...reactions2repliesAwarenessInsurance & DisabilityDiagnosis
Diet and Lifestyle Changes That Make Working with Endo Easier...Endometriosis is a condition that affects many women with symptoms such as pain, mood swings, and fatigue. Endometriosis has no cure. We call it chronic because it can last for...reactionscomments
Desperate...Hello, I like so so many of you feel like I am stuck in a loop and completely helpless and not sure what to do at this stage. I was...reactions1reply
Endometriosis ...Hello everyone, I just wanted to share my story and get some advice maybe at the same time. I just turned 37 and I have always had excruciating pain during...reactions4repliesFlaresLaparoscopyRecurrenceSymptoms
