Endometriosis & Hydronephrosis ...Hydronephrosis or swelling of the kidney(s) due to ureteral endometriosis. Does anyone else have this issue? If so, what was your course of action and/or resolution, if there was one?...reactions1replyPelvic PainComorbiditiesSymptoms
Adeno + endo - pencil poops, issues with orgasm and pelvic floor issues despite pilates...Hey there, I have adenomyosis (so uterus is constantly 3 month pregnancy thickness) and mild endo (small spot on one ovary, uterus taped to rectum, both treated with op and...reactions1reply
3 month follow-up ultrasound after MRI showed a 3.2 cm endometrioma on my ovary...So the background is, I went to urgent care back in March with stomach pains. Doctor thought it was a ruptured appendix, but sent me for a CT scan to...reactions1reply
Dating is Hard With Endo...Dating. If you have been in the dating scene lately, you know it is legitimately a crap shoot. It’s almost impossible to meet someone organically. At 39 I’m not going...reactions2comments
Apps to manage endo symptoms...Hey all! Have you ever tried using apps to support your endo journey? My doctor recommended a program called "manage endometriosis" with an app called Oneleaf. Apparently it helps with...reactions1replyCopingTreatmentSymptoms
Possible Endo Diagnosis ...I just had my fallopian tubes removed to become sterilized. My doctor also removed my IUD. I'm 37 with an almost teenager who is wonderful, and not in a financial...reactions1replyAwarenessTips & AdviceCoping
Laparoscopy...Hi! So I had my laparoscopy on Wednesday and they didn’t find endometriosis which yes I’m happy about BUT I’m still where I was a year back of not knowing...reactions3repliesDiagnosis
From Teen to Adult: My Endo Pain Management Experiences...I have been battling endometriosis for 20 years now. Endometriosis was only the beginning of my chronic health issues. This condition led me to different pain management clinics throughout my...reactionscomments
Helpful Supplements...Intent - provide info on my endometriosis story & what worked for me. I'm well into menopause now but have always wanted to help other women suffering from this awful...reactions1replyTreatment
When Surgery Isn't Life-Changing...In December of 2023, I had a life-changing surgery that did not change my life. I woke up in the hospital bed with my legs shaking uncontrollably from the many...reactions1comment
So It Goes: A Journey of Pain, Isolation and Hope...I’m 26 years old when I wake in the middle of the night to a knife-sharp pain radiating from both sides of my lower stomach, down my legs, and around...reactions2comments
Is this endo??...1. Pain getting triggered because of periods(starts between 3-5th day) which lasts for between 12-26 days 2. Lower abdomen+pelvic(in the middle + left side) (more on the pelvic region) 3...reactions1replySymptoms
Bowel issues and endo ...Does anyone suffer chronic with bowel flare ups of pain, constipation, loose stools and extreme cramping? This is something I have suffered with along side my endo and I do...reactions3repliesSymptomsDiagnosisCoping
Possible endo.. thoughts/advice?...So I’ve had two kids. One in 2022 and the other this year in January. They’re 17 months apart. I got pregnant easily with both of them. I was on...reactions1replyTips & AdvicePelvic PainSymptoms
How to Make Your Own Heating Pad...One of my go-to tools for managing my flares is my heating pad. Heating pads are excellent for healing muscle aches and pains. Did you know you can make your...reactionscomments
Pelvic pain and identity research survey...Hi, I'm Lisa and I'm a PhD student studying chronic pelvic pain and identity at the University of Buckingham through an anonymous online survey. The survey, which takes around 20...reactionsrepliesMental HealthResearch & Clinical TrialsPelvic Pain
Healthcare providers in Seattle...Hello! I’m looking for a specialist who treats endometriosis in Seattle. Very frustrated with doctors who only prescribe birth control without listening to my concerns. I’m in pain and can’t...reactions1replyHealthcare TeamDiagnosis
Endo & dizziness...Has anyone experienced dizziness or a floaty feeling from their endo? They suspect I have endo (I have a lap next week) due to intermittent pain, but I feel like...reactions1replySymptoms
Frozen Pelvis...I was diagnosed with a frozen pelvis in January 2024. I had surgery for a colostomy,because of severe bowel obstruction and at the same time my oncologist was going to...reactions5repliesSurgery
Charlie horses...This month the day prior to my period starting I had the WORST Charlie horses in my legs and groin area. 3 days in and my legs are still really...reactions1replyTips & Advice
