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Have you had more than one surgery for endometriosis?

If you already had one surgery for endo, how do/did you know when it is time to have another one?

  • What surgeries have you had?

  • What was recovery like?

  • How are you doing now?

  • Are you happy with your decision?

  • Anything else that you'd like to share?

  1. I have had two laparoscopy’s
    Recovery wasn’t too bad with both just sore for a while.
    I’m much better now.
    Yes happy with my decision.
    Gluten free diet is the best recommendation I have had. I was also told not to have further surgeries if I wanted to have children as it may cause further damage.

    1. , thank you so much for sharing with us! So happy you have found what works for you and that you seem to be feeling alright! Gluten free has definitely been helpful for me as well. Just wanted to stop by and let you know you are not alone on this journey. Please reach out to us anytime you need. We are here for you! -Kimberli (Team Member)

    2. Hi Ruby! I just wanted to come by and see how you have been doing lately! We hope well. Know we are thinking of you! <3 -Kimberli (team member)

  2. Hi, I’m new to this website and your question came up first.

    I have had three laparoscopies, partial hysterectomy and then an oophorectomy
    where I had frozen pelvis and surgery was 5.5hrs long. The major surgeries were performed after three c-sections also.

    Diagnosed at 22 years older after 11 years of suffering and wrong diagnosis’s.

    1. Thank you so much for sharing with us . You certainly have gone through a lot, that is for sure! Such a warrior. How have you been feeling since you had all of that done? Did any of it bring you relief? -Kimberli (Team Member)

    2. Hi there! I just wanted to circle back around and check in on you! How have you been feeling? Hoping well. Sending you all good thoughts. <3 -Kimberli (team member)

  3. I have had 9 laparoscopic surgeries. 7 for endometriosis, then 2 for hernia repair (hernias caused by repetitive surgical entry through the belly button)

    1. sorry I didn’t see this sooner. But like Kayleigh said, sadly, a hysterectomy isn’t a cure. It can still grow back without all the parts. I wish it would cure it tho! I have also been told something like that. I think it was 4 years ago when I went in thinking we would schedule my fourth excision surgery bc the pain had gotten to much to bare with. Even tho I was 33ish and won’t be having kids bc I have too many health issues and take several medications that would make it not only unsafe but also very difficult. My Dr was like you’re still young you could change your mind. She did suggest having an IUD placed (I have the mirena) in order to help my symptoms. I had never heard of it being used to treat Endo but I was open to anything. It really has been a good fit for me. I still have pain from time to time. But it’s not nearly as bad as it used to be. That said, when I go back next year to have the iud replaced I will talk to her about having a hysterectomy.

      Amber ( team moderator)

    2. hi! I just wanted to stop by and check in on you. How have you been feeling lately? Hoping well! xo -Kimberli (advocate)

  4. I have had so many D&C's that I can't count and Thurs., Mar. 11, I will have my most current. I am 77 years old. When I learned of the creepy, crawly demeanor of an endo, my first response was to get it out of my system. Very fortunate to have a doctor who performed the Endo's back in the '90's. He is still in practice but refers his work to upcoming superstars.

    1. oh goodness you have been through so much. Have they given other options for treatment or is this the best they have to offer. At any rate I hope you are doing well. Thank you so much for sharing a bit of your story with us. Big hugs!

      Amber ( team moderator)

    2. Hello celebrate - You are 77 and can I presume you had a hysterectomy by now? Im not wanting to stick about if this is what I have in front of me the next 40 years. I certainly celebrate you for your must have a pure love of life 😉 x I have just had my first after begging for it in late 30s!

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