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Have you had more than one surgery for endometriosis?

If you already had one surgery for endo, how do/did you know when it is time to have another one?

  • What surgeries have you had?

  • What was recovery like?

  • How are you doing now?

  • Are you happy with your decision?

  • Anything else that you'd like to share?

  1. I have had two laparoscopy’s
    Recovery wasn’t too bad with both just sore for a while.
    I’m much better now.
    Yes happy with my decision.
    Gluten free diet is the best recommendation I have had. I was also told not to have further surgeries if I wanted to have children as it may cause further damage.

    1. Hello @Ruby thanks so much for sharing your experience with this community. Staying gluten-free also helps me immensely, although sometimes it’s tricky to stick to that side of my diet. Regarding surgeries, these are huge processes for our bodies to go through, some patients have very few, others multiple. Some bodies have an incredible capacity to heal.

      The best thing would be to speak to an endometriosis specialist, or two, and see how their opinions differ, or agree, on the subject. A fertility expert could also help you a lot if you’re considering pregnancy and your endometriosis gets in the way of your plans.

      Again, thank you so very much for being so open with us. Stay in touch and take good care of yourself 😀 – Jessie (team member)

    2. @Ruby, thank you so much for sharing with us! So happy you have found what works for you and that you seem to be feeling alright! Gluten free has definitely been helpful for me as well. Just wanted to stop by and let you know you are not alone on this journey. Please reach out to us anytime you need. We are here for you! -Kimberli (Team Member)

  2. Hi, I’m new to this website and your question came up first.

    I have had three laparoscopies, partial hysterectomy and then an oophorectomy
    where I had frozen pelvis and surgery was 5.5hrs long. The major surgeries were performed after three c-sections also.

    Diagnosed at 22 years older after 11 years of suffering and wrong diagnosis’s.

    1. Hey @EndoT1D1976 thanks so much for being so open with this community. Sounds like you’ve been through so much, and eleven years of pain, oh my, that must have been incredibly tough. You sound super resilient, a true survivor, I hope you know that.

      This community is here for you, so if you have any questions, and doubts, or just fancy a rant, we exist to support you. Please reach out, whenever 😀 – Jessie (team member)

    2. Thank you so much for sharing with us @endot1d1976. You certainly have gone through a lot, that is for sure! Such a warrior. How have you been feeling since you had all of that done? Did any of it bring you relief? -Kimberli (Team Member)

  3. I have had 9 laparoscopic surgeries. 7 for endometriosis, then 2 for hernia repair (hernias caused by repetitive surgical entry through the belly button)

    1. Goodness it sounds like you have gone through quite a lot with your endo journey. How has everything been for you since your last procedure? Sending good vibes your way! - Kayleigh, Team

    2. my goodness you definitely have been through a lot. I had one surgery for hernia repair. I still don't really know how I got the hernia. The second surgery you had, did you just know the hernia was back? My surgery was 2 years ago and I am starting to feel pain I had before I had my hernia back. I know it could be all sorts of things, especially endo, but I wonder if another hernia has come back? My doctors never really explained to me the recurrence of hernias so I am kind of lost! Anyways, I hope you have been doing well! Sending hugs <3 -Kimberli (team member)

  4. I have had so many D&C's that I can't count and Thurs., Mar. 11, I will have my most current. I am 77 years old. When I learned of the creepy, crawly demeanor of an endo, my first response was to get it out of my system. Very fortunate to have a doctor who performed the Endo's back in the '90's. He is still in practice but refers his work to upcoming superstars.

    1. I'm glad to hear that you found a doctor that listened to you and you had a good relationship with. That's so fortunate. I will be thinking about you this week and sending extra love your way on Thursday. Please keep us posted on how everything goes. You have our full support here! - Warmly, Kayleigh, team

    2. just wanted to check in on you and see how your surgery went! I hope recovery is going well and you are resting nicely and feeling ok. Sending you big hugs and good thoughts <3 -Kimberli (team member)

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