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Endo and Other Health Conditions

Do you live with any other health conditions outside of endometriosis?

We asked our Facebook community, and here are just some of the many conditions mentioned:

Migraines, asthma, permanent inflammation, mental health disorders, chronic gastritis, complex regional pain syndrome, patellofemoral syndrome, arthritis, scoliosis, sjogrens, pcos, and anemia.

What other health conditions do you live with outside of endometriosis?

  1. This is such a good question! I was diagnosed with depression and IBS in high school, several years before anyone checked for endometriosis. The list grew in my 20s, 30s, and 40s. I’m now 41, and I’ve so far also been diagnosed with generalized anxiety, migraine, PMDD, allergies, non-celiac gluten/wheat sensitivity, centralized pain, and periformis syndrome (when a muscle around the butt/tailbone gets inflamed.). I also dealt with severe insomnia off and on. - Keri (endometriosis.net team member)

    1. So many of us know the stress of symptoms that come back or get worse. I am eager to hear how your next procedures go. In the meantime, I’m wishing you well and sending you some hopeful vibes! - Keri (moderator)

    2. I know this stress all too well. Those good days you just want to hold on to them for as long as you can because you never know when they will be back. I am happy you did have a few months that were good, but also sad it didn't last for you 🙁 Please keep us updated on your next procedure in March. Sending you the biggest of hugs <3 -Kimberli (advocate)

  2. I have Fibromyalgia, RLS, Obstructive Sleep Apnea, IBS, heart issues that are trying to be diagnosed, constant headaches, mystery arthritis, and probably one or two more diseases yet to be diagnosed.

    1. I feel that last bit, one or two diseases yet to be diagnosed. Sort of where I am at and what I am thinking about myself. I am so frustrated for you that they still have yet to diagnose and figure out those heart issues for you. Continued prayers and hugs always <3 -Kimberli (advocate)

  3. I'm sad to hear that you both have so many similar diagnoses to me, but I know I'm also in good company! I have migraine, IBS, mast cell activation syndrome, dysautonomia, eczema, generalized anxiety disorder, depression, fibromyalgia, allodynia, and likely hypermobility. ~Katrina, Endometriosis.net Advocate

    1. I have just been diagnosed with disorder of autonomic nervous system but I honestly do not understand what it means yet - Amanda (team member)

  4. Endometriosis was my first health condition. But since then, I have developed chronic migraine, fibromyalgia, IBS, PCOS, asthma, tachycardia, and allergies. I also deal with depression and anxiety. It is a lot to live with and even more to manage. - Amanda (team member)

    1. it really is a lot to deal with, live with and manage <3 I can relate to a lot of what you just listed. Sending you the biggest hugs. I hope you know how strong and amazing YOU are Amanda. -Kimberli (advocate)

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