Active 4 days agoAnyone taking Arimidex for endo after a total hysterectomy ...Just looking for anyone who takes Arimidex for endo post a total hysterectomy. Any tips....reactionsrepliesTips & Advice
A How-To Guide for Self-Advocacy...After the initial shock of a chronic disease diagnosis, questions arise. What does this mean? How do I manage the symptoms? Can I afford my treatments and appointments? It feels...reactionscomments
Active 6 days agoEndo surgery 2 months ago / no change in symptoms ...My gf is very depressed she had lap surgery back in feb 27th a couple months ago which has done nothing to help she is still in intense pain especially...reactionsrepliesDiagnosisDepression
Will the pill affect my MRI scan results for endometriosis?...My doctor has finally referred me after over fifteen years of pain and symptoms, suspecting potential endometriosis. I take the pill back to back to control my symptoms (which works...reactionsrepliesPelvic PainTips & AdviceLaparoscopy
New pain relief...Ok so this doesn’t do anything for the crippling drill like twisting evil pain from your ovaries etc but if like me you are currently dealing with what appears to...reactionsrepliesCopingTips & Advice
Has anyone had uncontrollable bleeding...My daughter has endometriosis and adenomyosis. She bleeds 2 weeks out of the month. It's horrible. Has anyone had this and been able to successfully stop it and live a...reactions1reply
4th surgery...as many of you know tomorrow is my 4th surgery, 3 with the amazing dr c and 1 with an idiot who shouldn't be a doctor, im nervous and scared...reactions2repliesSurgery
Are Your Comfort Foods Making Your Flare Ups Worse?...When I'm in the middle of an endo flare, I sometimes find it hard to get out of bed. People with chronic illnesses like endometriosis often struggle with stress and...reactionscomments
Someone please relate to my symptoms ...I’m desperate, and I’m scared, and I can’t find anyone who has what I have and please tell me if anyone relates to this. About 6 months ago, I started...reactions4repliesSymptomsTips & AdvicePelvic Pain
Recent diagnosis and symptoms...I am new here and wanted to share my recent diagnosis and symptoms. Many years ago I was told I probably had endometriosis, but no imaging or confirmed diagnosis. Several...reactions1replyDiagnosisSymptomsCoping
Having Hope on a Fertility Journey...I know how overwhelming it can be when life takes unexpected turns, especially when you come to the fertility scene later in life, like in your 40s, and have been...reactionscomments
Severe pain - why? ...Hi - I have stage 4 endo, awaiting a hysterectomy and treatment on my bowel and have a few cysts and fibroids, I have been in bad pain for over...reactions1replyCoping
diagnosis...My 24 year daughter each month when getting her period can barely manage to get up of the bathroom floor - whilst she is in pain and incredibly emotional. She...reactions1reply
Endometriosis...I just have to put my opinion in here. Endometriosis is becoming more prevalent since the pill, and any other birth control,such as Merena coil, the implant etc etc Drs...reactionsrepliesAwareness
They said I don’t have endless ...On the 8th of January this year (2025) I had a laparoscopy which I waited a whole ten years for. I was told by several gynaecologists that they have no...reactions1replySurgeryPelvic PainLaparoscopy
Words of wisdom before lap surgery ...Hello, I’m new to the community and I’m seeking some information and advice. I have been told since I was 16 that I probably have endo and my pcp put...reactions1replyLaparoscopySurgeryTips & Advice
Sex and endo...Hi all, looking for ideas and advice No other way to say it but be blunt… Recently went for a smear and it was quite possibly the most painful I’ve...reactions1replyTips & AdviceIntimacyPelvic Pain
Advocating for Yourself With Your Doctor...The process of being diagnosed with a chronic health condition can be long and difficult. People with endometriosis often have a lengthy journey between when they first begin experiencing symptoms...reactionscomments
scared to death...I havent posted since 2024, well im scared to death, I already had 2 surgery, with my last surgery being feb 23rd 2023, well my 3rd surgery is scheduled for...reactions14repliesLaparoscopyPelvic PainFlares
Operate or not?...Hello community! I wanted to get some opinions from people that have experience with Endo! I am 30 years old and I've always had excruciatingly painful periods with vomiting and...reactions3repliesSurgeryLaparoscopyTips & Advice
