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Read conversations, start a discussion, and connect with others about endometriosis.

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Interested in hearing from those with endometriosis: Survey Research

Hi everyone! I'm investigating the experiences of those with endometriosis to help inform psychological interventions and management plans for their well-being. I would appreciate it if you could help me...

Anxiety and it’s side effects

My relationship with anxiety started in my 40 s all of a sudden when my body went into an overdrive mode.It started with my mum’s illness and then one day...

I suffer from bad anxiety during my ob gyn visits and my bp spikes badly and with that my heart rate

I really don’t know how to handle this ,I have tried meditating,box breathing before sessions,plus try compiling my thoughts into points but when the time comes I find am shaking...

Pelvic pain and identity research survey

Hi, I'm Lisa and I'm a PhD student studying chronic pelvic pain and identity at the University of Buckingham through an anonymous online survey. The survey, which takes around 20...

Mirena coil and sever fatigue

I’m 30 years old and only got diagnosed with endometriosis in February 24. I was told it’s acute stage 5 and was in my bladder, bowel and pouch Douglas ...

Memory/brain fog issues post-endometriosis treatment

I had endometriosis and fibroids removed in April 2023. About one month later, my doctor set me up with progesterone-only birth control, in addition to Orilissa, to reduce my estrogen...

Partner with Endometriosis

Hello all, I’m new to these forums and just signed up because I am in a relationship with a woman who has Endometriosis. Since this is my first post, it...

Desperate for some advice

I have been having irregular periods for 8 years before this my periods were very regular and heavy. I have been going back and forth to the doctors for 7...

Bowel endo and hysterectomy

I found out in March that I have stage 4 endometriosis. I’ve been having severe pain for years, was diagnosed with IBS-c and had all the symptoms of endo, but...

Any advice . . . UK based

Hi all, I guess I’m here for some advice or just to know I’m not alone as I feel like I’m completely alone at the moment and either doctors don’t...

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