I guess I’m here for some advice or just to know I’m not alone as I feel like I’m completely alone at the moment and either doctors don’t want to help me, or do want to help, but can’t!
Bit of back story . . . I have always had awful menstruation pain, resulting in me being prescribed the pill for the pain at the age of 12. This has got progressively worse since then. Ovulation pain entered the mix at about the age of 24. This has note developed it in a cycle of pretty much daily pain, which peaks and troughs throughout the month with my cycle. I’ve tried the combined pill, as well as the implant and also Tranexamix acid. I had a scare before Christmas as my C125 marker was elevated in some bloods. Luckily I was referred for immediate ultrasounds and these did not show anything malicious. My GP put in a gynae referral but the consultant will not see me until I have exhausted all other options so has said I need to try the coil.
Fast forward to today when I was booked to have this fitted at my local clinic, only to be told by the doctor that they are unable to fit this as they are only funded for this as a contraceptive and as my Husband has had a vasectomy, I do not qualify.
I completely broke down. I feel lost in this whole thing and I don’t know what else to do. I described all of my symptoms to the doctor today who said this is text book endometriosis, and my GP has also ‘off the record’ said this. I’m now waiting back to hear from my GP as to where I go now, and the doctor I wrote to today is also going to write a letter to my GP as this is clearly now having an impact on my mental health, as well as my day to day life.
I know this is so under diagnosed and am living through how difficult it is to get a diagnosis and I’m not really sure what I’m hoping for here, but figured reaching out to some ladies who have been through the same thing may help.
I’m sorry for the essay! Thank you for reading x