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Mirena coil and sever fatigue

I’m 30 years old and only got diagnosed with endometriosis in February 24. I was told it’s acute stage 5 and was in my bladder, bowel and pouch Douglas . It was layered off and I was given the mirena coil. The pain I’ve had my whole life has gone but the side effects I have no I genuinely feel are worse. My self esteem is low at times and my self worth is plummeting, the weight gain is atrocious (this ain’t imaginary as the scales don’t lie ) and my migraines are more frequent. But worst of all is the immense fatigue I have daily ! I wake up groggy and can’t function or even get out of bed without 6 espressos , I try to take napes when I can just to get through the day, and I result in drinking coke coffee and lucozade. This is not me at all as caffeine enhances my migraine so I try to never have it. I used to love running and going to the gym but even that is a task to much which isn’t helping my mental state . Is this normal has anyone else experienced this , I’m beginning to feel like I’m going crazy .

  1. Hi . Welcome to the community! I am glad you found us and reached out. No, you are not going crazy. Extreme fatigue is a common symptom of most any chronic illness, including endometriois, but there are many other possible causes as well that should be investigated. Debiliating fatigue, like you are experiencing, can come from something as simple as deficiencies in Vitamin D, B vitamins, iron and folic acid. You might also have thyroid disease, a sleep disorder, or internal bleeding that has gone unnoticed. When you develop one autoimmune disease, it often opens the door to others, which is why it is important to keep an open mind as you advocate for yourself and push for answers. The best place to start is with your primary care doctor. Explain how you feel and request tests for nutritional deficiencies and thyroid levels. Please don't let your doctor tell you that you are depressed. It's always a possibility, but this sounds like much more than that and that kind of gaslighting could result in a missed diagnosis. If your doctor doesn't take your concerns seriously, consider finding someone new. I wouldn't wait because it will only get harder and harder to take action if the fatigue worsens. Please keep me posted and let me know you've scheduled an appointment. I will be thinking of you. Gentle hugs. - Lori (Team Member)

    1. Hi Lori,

      Thank you for your reply, I already take several supplements like iron, probiotics, multivitamins , b12 and omega 3 .I’ll definitely look into getting some folic acid thank you. It all just seems so coincidental that my diet and general life hasn’t changed at all, it’s just the fatigue which is killing me and when I check my Endo diary it all coincides with getting the coil fitted. I’m meant to see my gyno who diagnosed my Endo on the 29th. Do you still think it’s worth me contacting my gp to look into this ? My gyno is a private dr. Thank you for your response

      1. Hi . There is no reason you can't consult with both unless you really feel this is related to the coil. Though fatigue is not listed in the side effects, a quick Google search that many people have complained of extreme fatigue that appears to be related to the Mirena coil. Would you consider having it removed and trying something else? - Lori (Team Member)

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