I found out in March that I have stage 4 endometriosis. I’ve been having severe pain for years, was diagnosed with IBS-c and had all the symptoms of endo, but it was never considered because I was fertile and was blessed with 3 healthy easy pregnancies. In March I went in for surgery to have an ovarian cyst removed. It was predicted to be the size of a lime, but during surgery it was revealed to be an endometrial cyst the size of a grapefruit. The doctor said I have endometriosis everywhere in my pelvis, even on my bladder and bowels.
I met with an oncologist and have submitted paperwork to the Seckin Endometriosis Center in NY who I will meet with next month. I don’t have all the answers yet, but a full hysterectomy leaving 1 ovary (the left ovary seems alright, but they won’t know for sure until they are in during surgery) and a possible bowel resectioning is what is being discussed. Has anyone been through this? My biggest question is, after surgery, will I actually feel better emotionally? I have mood swings and experience so many emotional rollercoasters from endo and I am scared after surgery the pain will go away but emotionally I will still feel awful.