I’m desperate, and I’m scared, and I can’t find anyone who has what I have and please tell me if anyone relates to this. About 6 months ago, I started having muscle spasms in my vagina, and it spread to my uterus area, and it was so bad my husband felt it and said it was like a baby kicking. It didn’t hurt at first, just annoying, but after two hours later it felt like squeezing a muscle so tight and never relaxing, it made my entire lower pelvis and legs go numb and I ran to the ER, where they did a CT, said “maybe a kidney stone” ( I’m a nurse, I know you can see those on a CT, and it didn’t show one, and sent me home. I then had them every day, not to the same severity, but all day, every day. Then I got this deep sacrum pain that made it so I couldn’t sit at all, and laying down wasn’t much more of a relief. They sent me to the ER 3 times, one to see if I had cauda equina, and the neurologist said I need MRIs, and I told him I was scared they would see nothing and do nothing, and he said “I HIGHLY doubt we will see nothing”….. they saw nothing and sent me home. I’ve seen 3 neurologists, a urogynecologist, and had 3 months of pelvic floor therapy… the ONLY thing that helped pain, or spasms (sometimes) was a vaginal suppository of Valium. Now they are starting not to work, and the muscle spasms are all the way up the left side of my abdomen, where my colon is. They FINALLY are sending me to an endometriosis specialist, but I had to wait 2 months to get in, my appointment is next week. But the last few months I’ve had days in a row where I will have bowel movements 10 times in a night shift, cramping so bad I run to the bathroom for almost nothing to happen. Then the other day after going to the bathroom I had a deep sacral pain that was so bad, shooting on and off, I fell sobbing to the floor and nothing helped until I took a suppository and a leftover Norco. My husband keeps saying that I’m being dramatic, that it could be endometriosis but I’m worried it has spread to my bowel and bladder, and nerves. I’m so scared that they are going to tell me it’s nothing. Someone please, just tell me I’m not alone.