Sex and endo...Hi all, looking for ideas and advice No other way to say it but be blunt… Recently went for a smear and it was quite possibly the most painful I’ve...reactions1replyTips & AdviceIntimacyPelvic Pain
Advocating for Yourself With Your Doctor...The process of being diagnosed with a chronic health condition can be long and difficult. People with endometriosis often have a lengthy journey between when they first begin experiencing symptoms...reactionscomments
scared to death...I havent posted since 2024, well im scared to death, I already had 2 surgery, with my last surgery being feb 23rd 2023, well my 3rd surgery is scheduled for...reactions14repliesLaparoscopyPelvic PainFlares
Operate or not?...Hello community! I wanted to get some opinions from people that have experience with Endo! I am 30 years old and I've always had excruciatingly painful periods with vomiting and...reactions3repliesSurgeryLaparoscopyTips & Advice
Laparoscopic Surgery...Hello, I just had my first laparoscopic surgery and they removed my Endometrioma from my left ovary, it has been 5 days and I am getting slight pain in my...reactions1reply
Endometriosis had...Suffered for years with it so major operations it's a horrible disease I'm Margaret from Ireland 💕...reactions1reply
A new symptom each month… this new one sucks!...Anyone get this? Consistently now since my last flare up I get a new symptom each menstrual cycle… this month turns out to be severe pain down my right neck...reactions3repliesSymptoms
How to handle dismissive doctors? What treatment should I be looking out for?...Hi, all! I am new to this web page and am honestly looking to chat with some people who also suffer from endometriosis. I am nineteen and got diagnosed a...reactions1replyInfertility & PregnancyDepressionCoping
Reaction to Deep Endometroisis Diagnoses...Hello! I had surgery yesterday and was diagnosed with deep endometriosis (the consultant said they don't use the stage system anymore but basically it was a sever case). When I...reactionsrepliesDiagnosisCoping
Reaction to Deep Endometroisis Diagnoses...Hello! I had surgery yesterday and was diagnosed with deep endometriosis (the consultant said they don't use the stage system anymore but basically it was a sever case). When I...reactions1replyDiagnosisCoping
Ovary stuck to the back of womb...Hi, I've been having trouble with my periods for a long time but more so the past 3 years. I have had polyps removed around 4 years ago which made...reactions1replyPelvic PainEndo BellyCoping
Finding Pleasure When Orgasms Hurt...If you have endometriosis, penetrative sex may feel uncomfortable. Many people living with endometriosis explore different forms of intimacy, like cunnilingus or masturbation. But what can you do when orgasms...reactionscomments
Endometriosis ...Hi I just wanted to ask for some advice, I am a 24 year old female & for around 5 years now I have suffered from what I THINK is...reactions1replyDepressionDiagnosisCoping
Frozen pelvis...I just had surgery for a bladder sling and hysterectomy and vaginally lift. I had previously had surgery whenmi was 28 to remove a left ovary and part of my...reactions1replySurgeryLaparoscopyHysterectomyDiagnosis
Endometriosis ...Hi ladies I'm new to the,group after suffering for years,I finally got diagnosed 2 weeks,ago after needing surgery to remove a 4cm endemetroma. I was wondering if anyone experiences excruciating...reactions1replyCoping
What are some tips for managing endo pain?!...I am in severe pain quite frequently. I am prescribed and taking MyFembree but doesn’t even touch the pain. The next step is surgery to look for it but I...reactions1replyTreatment
I Scream into the Void and Nobody Hears...I am not yet 20. I have had painful periods since I started menstruating. I've been in so much pain that I've vomited and fainted. I keep asking doctors for...reactionscomments
Mirena coil for endo ...Has anyone had the mirena coil specifically for their endometriosis? What was your experience? Weight gain, a new, anxiety etc?...reactions5repliesTreatment
Have you tried a massage gun?...So I am lying on the sofa currently typing this with a massage gun on high pummelling away at my ovaries. Let me explain! I have been swimming recently and...reactions1replyTips & Advice
Impact of Endometriosis Study Seeing Participants...Hello! I'm studying the impact endometriosis has on the lives of individuals with the disease, as well as their experiences with medical care. My interest stems from knowing several women...reactions7repliesResearch & Clinical Trials
