Impact of Endometriosis Study Seeing Participants...Hello! I'm studying the impact endometriosis has on the lives of individuals with the disease, as well as their experiences with medical care. My interest stems from knowing several women...Reactions0reactionsComments7 repliesResearch & Clinical Trials
Diagnostic LAP - no diagnosis...Hi all, Wondering if anyone has ever experienced this. I had a diagnostic LAP today that was scheduled due to 7 years of great pain and doctor visits, most pushing...Reactions0reactionsComments2 repliesDiagnosisSurgery
Interesting interview with Shannon Cohn (Below the Belt)...I found an interesting interview with Shannon Cohn - the author of the documentary Below the Belt: https://www.youtube.com/watch?v=S2rNECma7Mk...Reactions0reactionsComments1 repliesAwareness
Calcium-D-Glucarate & DIM...Has anyone ever used Calcium-D-Glucarate in association with DIM (Diindolylmethane) therapy for endometriosis? From what I have read, DIM together with Calcium d-glucarate helps to balance the sex hormones -...Reactions0reactionsComments5 repliesHealthcare TeamTreatment
Request for Proof of Pain Related to Endometriosis for Social Security Scotland...I am writing to seek your assistance in providing documentation to help substantiate my application to Social Security Scotland, particularly regarding the painful nature of endometriosis. Despite being diagnosed with...Reactions0reactionsComments6 repliesAwareness
Letting Go of Perfection on My Fertility Journey...I've always considered myself a pretty organized person. As a kid, getting new binders for school was like a little slice of heaven for me. As an adult, I get...Reactions0reactionsComments0 comments
Anxiety and it’s side effects...My relationship with anxiety started in my 40 s all of a sudden when my body went into an overdrive mode.It started with my mum’s illness and then one day...Reactions0reactionsComments1 repliesMental Health
Has anyone taken Pause tablet for pain and bleeding...I wanted to know since my gynaec gave that to me this time saying it’s one less medicine but I have this question now what do I do when I...Reactions0reactionsComments5 repliesTreatmentSide Effects
I suffer from bad anxiety during my ob gyn visits and my bp spikes badly and with that my heart rate...I really don’t know how to handle this ,I have tried meditating,box breathing before sessions,plus try compiling my thoughts into points but when the time comes I find am shaking...Reactions0reactionsComments3 repliesMental Health
Reoccurrence at age 75...In 1981 at the age of 32 I had a total abdominal hysterectomy due to endometriosis. At that time my GYN put me on Premarin. In 2009 I developed painful...Reactions0reactionsComments3 repliesRecurrence
Endometriosis & Hydronephrosis ...Hydronephrosis or swelling of the kidney(s) due to ureteral endometriosis. Does anyone else have this issue? If so, what was your course of action and/or resolution, if there was one?...Reactions0reactionsComments1 repliesPelvic PainComorbiditiesSymptoms
Adeno + endo - pencil poops, issues with orgasm and pelvic floor issues despite pilates...Hey there, I have adenomyosis (so uterus is constantly 3 month pregnancy thickness) and mild endo (small spot on one ovary, uterus taped to rectum, both treated with op and...Reactions0reactionsComments1 replies
3 month follow-up ultrasound after MRI showed a 3.2 cm endometrioma on my ovary...So the background is, I went to urgent care back in March with stomach pains. Doctor thought it was a ruptured appendix, but sent me for a CT scan to...Reactions0reactionsComments1 replies
Dating is Hard With Endo...Dating. If you have been in the dating scene lately, you know it is legitimately a crap shoot. It’s almost impossible to meet someone organically. At 39 I’m not going...Reactions0reactionsComments2 comments
Apps to manage endo symptoms...Hey all! Have you ever tried using apps to support your endo journey? My doctor recommended a program called "manage endometriosis" with an app called Oneleaf. Apparently it helps with...Reactions0reactionsComments1 repliesTreatmentSymptomsCoping
Possible Endo Diagnosis ...I just had my fallopian tubes removed to become sterilized. My doctor also removed my IUD. I'm 37 with an almost teenager who is wonderful, and not in a financial...Reactions0reactionsComments1 repliesCopingTips & AdviceAwareness
Laparoscopy...Hi! So I had my laparoscopy on Wednesday and they didn’t find endometriosis which yes I’m happy about BUT I’m still where I was a year back of not knowing...Reactions0reactionsComments3 repliesDiagnosis
From Teen to Adult: My Endo Pain Management Experiences...I have been battling endometriosis for 20 years now. Endometriosis was only the beginning of my chronic health issues. This condition led me to different pain management clinics throughout my...Reactions0reactionsComments0 comments
Helpful Supplements...Intent - provide info on my endometriosis story & what worked for me. I'm well into menopause now but have always wanted to help other women suffering from this awful...Reactions0reactionsComments1 repliesTreatment
When Surgery Isn't Life-Changing...In December of 2023, I had a life-changing surgery that did not change my life. I woke up in the hospital bed with my legs shaking uncontrollably from the many...Reactions0reactionsComments1 comments
