Has anyone had uncontrollable bleeding...My daughter has endometriosis and adenomyosis. She bleeds 2 weeks out of the month. It's horrible. Has anyone had this and been able to successfully stop it and live a...reactions1reply
4th surgery...as many of you know tomorrow is my 4th surgery, 3 with the amazing dr c and 1 with an idiot who shouldn't be a doctor, im nervous and scared...reactions2repliesSurgery
Are Your Comfort Foods Making Your Flare Ups Worse?...When I'm in the middle of an endo flare, I sometimes find it hard to get out of bed. People with chronic illnesses like endometriosis often struggle with stress and...reactionscomments
Someone please relate to my symptoms ...I’m desperate, and I’m scared, and I can’t find anyone who has what I have and please tell me if anyone relates to this. About 6 months ago, I started...reactions5repliesSymptomsTips & AdvicePelvic Pain
Recent diagnosis and symptoms...I am new here and wanted to share my recent diagnosis and symptoms. Many years ago I was told I probably had endometriosis, but no imaging or confirmed diagnosis. Several...reactions1replyDiagnosisSymptomsCoping
Having Hope on a Fertility Journey...I know how overwhelming it can be when life takes unexpected turns, especially when you come to the fertility scene later in life, like in your 40s, and have been...reactionscomments
Severe pain - why? ...Hi - I have stage 4 endo, awaiting a hysterectomy and treatment on my bowel and have a few cysts and fibroids, I have been in bad pain for over...reactions1replyCoping
diagnosis...My 24 year daughter each month when getting her period can barely manage to get up of the bathroom floor - whilst she is in pain and incredibly emotional. She...reactions1reply
Endometriosis...I just have to put my opinion in here. Endometriosis is becoming more prevalent since the pill, and any other birth control,such as Merena coil, the implant etc etc Drs...reactionsrepliesAwareness
They said I don’t have endless ...On the 8th of January this year (2025) I had a laparoscopy which I waited a whole ten years for. I was told by several gynaecologists that they have no...reactions1replySurgeryLaparoscopyPelvic Pain
Words of wisdom before lap surgery ...Hello, I’m new to the community and I’m seeking some information and advice. I have been told since I was 16 that I probably have endo and my pcp put...reactions1replyTips & AdviceLaparoscopySurgery
Sex and endo...Hi all, looking for ideas and advice No other way to say it but be blunt… Recently went for a smear and it was quite possibly the most painful I’ve...reactions1replyPelvic PainIntimacyTips & Advice
Advocating for Yourself With Your Doctor...The process of being diagnosed with a chronic health condition can be long and difficult. People with endometriosis often have a lengthy journey between when they first begin experiencing symptoms...reactions1comment
scared to death...I havent posted since 2024, well im scared to death, I already had 2 surgery, with my last surgery being feb 23rd 2023, well my 3rd surgery is scheduled for...reactions14repliesFlaresLaparoscopyPelvic Pain
Operate or not?...Hello community! I wanted to get some opinions from people that have experience with Endo! I am 30 years old and I've always had excruciatingly painful periods with vomiting and...reactions3repliesLaparoscopyTips & AdviceSurgery
Laparoscopic Surgery...Hello, I just had my first laparoscopic surgery and they removed my Endometrioma from my left ovary, it has been 5 days and I am getting slight pain in my...reactions1reply
Endometriosis had...Suffered for years with it so major operations it's a horrible disease I'm Margaret from Ireland 💕...reactions1reply
A new symptom each month… this new one sucks!...Anyone get this? Consistently now since my last flare up I get a new symptom each menstrual cycle… this month turns out to be severe pain down my right neck...reactions3repliesSymptoms
How to handle dismissive doctors? What treatment should I be looking out for?...Hi, all! I am new to this web page and am honestly looking to chat with some people who also suffer from endometriosis. I am nineteen and got diagnosed a...reactions1replyInfertility & PregnancyCopingDepression
Reaction to Deep Endometroisis Diagnoses...Hello! I had surgery yesterday and was diagnosed with deep endometriosis (the consultant said they don't use the stage system anymore but basically it was a sever case). When I...reactionsrepliesDiagnosisCoping
