They said I don’t have endless
On the 8th of January this year (2025) I had a laparoscopy which I waited a whole ten years for.
I was told by several gynaecologists that they have no doubt I have endometriosis. Well, after my surgery I was told different. They said they had found film covered adhesions which had made my right ovary stick to my stomach wall, along with part on my intestine. This apparently is absolutely not endometriosis.
7 weeks to the day today, all my normal pains are back.
I’m so worried I won’t get anywhere now. They discharged me from gynaecology before I’d even led the hospital after my surgery and have told me and put on my records that if the pain continues to just have GP manage chronic pain.
I’m so scared and confused I can’t go on with just taking pain killers.
Has anyone else had this? What do o do?
Hey
, I can hear how frustrated you are that you're back to square one and how desperate you are to find a solution for your pain. I'm sorry that you left feeling so helpless. And I agree, relying on pain killers for the rest of your life is certainly not sustainable. Diagnosing endometriosis is challenging and many times it takes persistence on the patients' side to make themselves feel heard. It sounds like you've been on this journey for a long time. I'm sure you feel exhausted from having to fight for yourself. Have you considered looking for another doctor to get another opinion? What tests have they done? I'm just going to leave a link here for you that outlines some of the ways one can be diagnosed with endometriosis. Maybe there's something on there you haven't tried yet. https://endometriosis.net/diagnosis
Here is also an article about alternative methods of pain management, specifically for endometriosis. You can try some of these in the meantime, and maybe they will help you to stay off of pain killers. https://endometriosis.net/living/pain-management
Hopefully someone here will be able to reply with more personal experience and advice. Please feel free to reach out if you have more questions. Sending hugs.
- Kat (Team Member)
