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Wondering about if I have endometriosis. Looking for answers.

Hi all.

I wanted to reach out for some guidance. I am a 24 year old female. About a year and a half ago after I got my IUD taken out, i began having extreme urinary urgency and frequency. I was going about every 15-20 minutes. I also had low back pain that began at this time, and low grade fevers. I talked to my GP and I was tried on a bunch of different antibiotics even though I had negative urines. Finally she tried doxycycline and tetracycline for suspected pelvic inflammatory disease. Long story short I had severe esophagitis and ended up in the hospital after multiple ER visits. I was admitted for 5 days but I finally got referrals after this. I also had a lumbar spine MRI which was normal. Urology got me in for an urgent cystoscopy which only showed inflammation in my bladder and a mass pushing in on the posterior wall of the bladder which they didn’t seem worried about. I also got a SI MRI which was normal. Since then I was on a bladder med, solinifican, but had to go off it because my constipation was so bad. My doctor and gyne think it’s endo. Now I am on progesterone and am still struggling with low grade fever, night sweats, and still some frequency and low back pain. I asked my gynecologist for a specific ultrasound referral for endo but she didn’t want to but wants me to try Lipron. I feel like I’m so young. I just want to get back to my active self and get my life back. Any suggestions/ideas? I appreciate any ideas.

Thank you so much in advance.

  1. Hey , my goodness you have been through so much at such a young age. It sounds overwhelming and exhausting having to do all that testing and experimenting with treatments. I imagine you're feeling disappointed about not having an answer to why you're in so much pain. I'm so sorry you're going through this. Unfortunately, I don't have personal experience with this and I'm unable to give medical advice. However I want to reassure you that you're not alone. We're here to listen and support you. Our members have been through it all, so be assured we understand your pain and frustration. I hope someone can chime in with some advice. Sending you warm hugs and pain free vibes.
    - Kat (Team Member)

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