Hi ladies I'm new to the,group after suffering for years,I finally got diagnosed 2 weeks,ago after needing surgery to remove a 4cm endemetroma. I was wondering if anyone experiences excruciating pain when stood in the,same position. I go weekly to watch my son play football and the pain is just unbearable, I also get it if im sat on the floor for to long. Is there,any thing I can do to help the pain? I'm seeing the consultant in January to discuss things further but feel so alone I thought I'd join this group.