Endometriosis and How It Has Changed Me As a Person...Endometriosis has changed me. It's as simple as that. I am not the same person I was years before my diagnosis. Honestly, I don't 100% remember who I was before...reactions2comments
Tips for diagnosis process ...Hello all. I’ve long suspected I have endometriosis as I have always suffered with terrible period pains and often deal with excruciating pains when exercising. This is really hard for...reactions1replyDiagnosis
Five Things To Consider if You Have Chronic Bladder Pain With Endo...For many of us with endo, if we get pain in the bladder or urethra or have problems urinating, we naturally might assume that endometriosis is on our bladder. While...reactions3comments
Laparoscopy Advice...Hi, since starting my period I have always had issues. I used to get sent home due to pain, I couldn’t walk and was sometimes sick. I had really heavy...reactions2repliesDiagnosisCoping
The Benefits of Keeping a Symptom Journal...When we think about a journal, we think about writing out our feelings or even a list of things for which we’re thankful. Both of those aspects are helpful and...reactions4comments
It Takes a Village: Finding Support for Endometriosis From Multiple People...Living with a chronic invisible illness like endometriosis has taught me many powerful lessons. One of the most important lessons I learned was not to expect everything you need from...reactionscomments
Endometriosis Stage 5...It all started when I was 15 years of age with my first operation to diagnose endometriosis. I was told that I would not be able to fall pregnant which...reactionscomments
Right ovary located on left side of pelvis ... What?...Hi everyone! I recently had an ultrasound that showed my right ovary on the left side of my pelvis. I lost my left ovary due to a large endometrioma a...reactions3replies
My GYN didn't ditch me after all!...In my post 'Updating my Support System', I spoke about how it looked like my GYN of 16yrs left her practice to become an IVF specialist and didn't refer me...reactions2replies
Never Accept “I Don’t Know” When Seeking a Diagnosis...Navigating an endometriosis diagnosis can be incredibly challenging. For many of us, it will involve a myriad of doctors' appointments and disappointing treatment strategies, and even misdiagnoses. Endometriosis is also...reactions2comments
My Wife's Mystery Severe Lower Back/Abdominal/Pelvic/Leg Pains...Any help or information will be greatly appreciated! My wife has been in and out of emergency rooms/family doctor/pain specialist doctor on multiple occasions with mysterious/undiagnosed chronic pains starting October...reactions8repliesDiagnosisHysterectomyPelvic Pain
Plus size seeing gynaecologist ...Hey Wondered if anyone can put my mind at ease. The doctor has referred me to see the gynaecologist for suspected endometriosis. I wondered what happens when I go and...reactions11repliesAwarenessDiagnosis
How Surgery Recovery Went For Me...As someone with stage 4, deep infiltrating endometriosis, I am quite familiar with surgery. My first ablation was in 2009, and I had another six months later in 2010. Then...reactionscomments
Dairy issue after endo surgery ...Afternoon , I had endo surgery (Laparoscopy) on the 12th of April. Ever since I was aloud to eat dairy(milk/cheese/ice cream as example) a week after surgery, it’s not agreeing...reactions8repliesDiet & Nutrition
Intro to Endo Backstory...Hello everyone, I’m not sure how this goes, but I wanted to write to a large community, specifically those who truly know what it's like and then some. I had...reactions1comment
Mid cycle symptoms...I am interested to hear from anybody who has symptoms in the first half of their cycle (follicular phase). I have bad period cramps but the first half of my...reactions7repliesSymptoms
Pain after oophorectomy...I was diagnosed with endo 7 years ago and have had 4 surgeries since. My most recent one was over a year ago in which my OBGYN removed my left...reactions1replyPelvic PainDiagnosis
Managing Weight With Endometriosis...Can we talk about the weight fluctuations with endometriosis? As women, there are deeply rooted messages about our appearance and our self-image that certainly don’t set the stage for a...reactions2comments
Endometriosis and Autoimmune Diseases...While not officially classified as an autoimmune disease, there are many doctors and other health professionals who support and recognize endometriosis as an autoimmune disease, despite its unofficial classification. Endometriosis...reactions1comment
