Endometriosis Can Make You Socially Awkward (And That's Okay)...This last weekend was, quite unexpectedly, a busy one. Perhaps encouraged by warmer weather and brighter skies, friends and acquaintances were everywhere here in Brighton, U.K. I bumped into them...reactions1comment
Looking for good surgery stories / outcomes...I'm one week from my excision surgery and I'm pretty nervous. I've heard a lot of stories about complications and issues, but is there anyone out there with good ones?...reactions13repliesLaparoscopyTips & AdviceTreatment
Under rib endometriosis pain? ...Does anyone get pain directly under the ribs, kind of like flank pain, is the way I would describe it. During a flare up or just in general...reactions5repliesFlaresPelvic Pain
The Barriers to Care for Trans and Nonbinary Folks...Author note: Quest uses they/them and he/him pronouns interchangeably. I will use both pronouns for them throughout this article. Picture this: you’ve waited 18 years for an endometriosis diagnosis. You’ve...reactionscomments
Mindful Eating and Appetite Loss: Recovering the Joy of Eating...If I had to describe my current state, I’d say I am, mostly and quite definitely, hungry. Yet, despite my hunger pans, I do not wish to eat much. At...reactionscomments
Menstrual period after laparoscopy ...I'm 34 years old had my first lap surgery for endo 5 weeks ago. My recovery process was tough 2 weeks post op, but I've since recovered and better now...reactions5replies
Creating a Feel-Good Period Routine...I’m going to say something that I know might be a sensitive topic for some: I look forward to having my periods. My period used to cause me anxiety all...reactions5comments
Tips to Managing Endometriosis Flare-Ups...If you have endometriosis, you may get a worsening of pain or other symptoms from time to time. Inflammation and hormonal fluctuations are likely to blame for these flare-ups. But...reactions2comments
What shouldn't you say to someone with endometriosis?...Sometimes people mean well and say things without really thinking them through. Other times, it can be ignorance of what life with endometriosis is really like. What has someone said...reactions11repliesTips & AdviceAwareness
Endometriosis Flares...What kind of symptoms do you typically experience when you have a flare-up? How do you handle your flares? Is there anything that helps you feel more comfortable during a...reactions3repliesTips & AdviceSymptomsFlares
Stage 4 Endo - Orilissa or Surgery?...Looking for some advice. I recently had a laparoscopic surgery to remove bilateral ovarian cysts. When they got in there, they realized I have stage 4 endometriosis spread to my...reactions3replies
7 Surprising Techniques to Managing Mood Swings...My friends describe me as optimistic, loyal, and determined. Anger or irritability are certainly not traits of my normal character. Yet, they loved to make an appearance when I was...reactions2comments
Allergies and Endometriosis...Many people living with endometriosis also live with different types of allergies. Do you currently live with allergies, and if so, what type? Do you find that anything helps to...reactions26repliesSymptomsComorbiditiesDiet & Nutrition
Getting pregnant after endo surgery...Afternoon, How long/cycles did it take to get pregnant after having complicated endo surgery with stage 3 being dignoise.After nearly 3 years trying I’m scard to get my hopes up...reactions4repliesInfertility & PregnancyLaparoscopyCoping
Canker Sores & Endo - Help!...Hi Everyone, I'm using this as a last resort because I wanted to know if anyone else deals with the same problem. I've had endometriosis for years, but in the...reactions6repliesSymptomsTips & AdviceDiet & Nutrition
nerve pain after surgery...Hi I am definitely frustrated I had my lap endo surgery 7 weeks ago. I am dealing with such pain in my right pelvis that radiates to my leg which...reactions4replies
Tips For Home After Exploratory Laparoscopy...Have you had exploratory laparoscopy surgery to see if endometriosis is the cause of your undiagnosed abdominal or pelvic pain? After this diagnostic surgery, you would need to meet the...reactionscomments
It's Okay to Ask for Help. Really....In the last month, I added another fun situation to my already complex health picture: concussion recovery. Can you detect the sarcasm here? Back in March, as I was bent...reactions4comments
The Physical Symptoms and Complications of Endometriosis...When it comes to endo, the complications and physical symptoms can vary greatly from person to person. We sat down with 4 of our Patient Leaders – Katrina, Kimberli, Amanda...reactionscomments
Finally found a doctor who actually wants to treat me!...I have a family history of endo, adeno and fibroids. Pretty much every woman I’m related to has had a lap or hysterectomy. I started my period at 12 and...reactions1replyDiagnosisPelvic PainTreatment