Stories

Hi! I thought I would share my story. It is currently 03:03am and I’m suffering with the aftermath of a very sudden flare, so whilst I’m sat with a couple...

Hello, I am 38 years old, I always had problems with my period I had Polycystic ovary since I was younger. I tried with a lot of treatment and I...

Hi all, I’m 49, had ovarian cysts most my life, irregular periods, IBS , very heavy periods some brown blood at times, adhesions removed in my mid 20s, widening and...

My name is Jenne and this is my Endo Story! I've been battling this since my childhood right around the age of when my period began and my doctors chalked...

Hi, I was diagnosed with endometriosis on Dec.2018. I started my period since I was 9 years old. I have experience pain and cramps all my life. I told my...

I will be held hostage for the next 48 hours. I will not be able to eat, drink, or communicate properly. My body will be tormented and I will have...

Thank you, brave women. First of all, I’ve had pain for as long as I can remember. I’ve had several surgeries and spells of excruciating pain. Cysts are very common...

I'm 27 years old and since having my first son 2 years ago, every month has gotten worse and worse. On every period I would be in agonizing pain right...

Quick recap of my story: I was finally diagnosed after years of EXCRUCIATING pain, blackouts, ER trips each month, misdiagnoses, etc. Had extensive surgery for my stage 4 endo, was...

Hello, my name is Simmy and I’m 21 years old. I got diagnosed with endometriosis Friday the 7th February after 9 years with pain. It all started when I first...

I’ve had constant pain and discomfort for a while and the doctors would always dismiss it as bad pms or ibs, but I never really got any further with any...

July 16, 2012: I had a surgery that inadvertently (and finally) put a diagnosis to years and years of debilitating symptoms, which dated back to freshman/sophomore year in high school...

A few weeks ago I finally received laparoscopic excision surgery to remove endometriosis. I am feeling so grateful to have had access to this surgery, as I know that with...

I was diagnosed with endometriosis this past year. I had no indications that this was a concern for me except for infertility. Over a year ago I found out that...

I first started experiencing painful periods, cysts and abnormally heavy bleeding at 14 years old. I went to the ER several times. I sought assistance from my OB GYN more...

I am 25. I have stage 4 Endometriosis. It took me around a decade to finally be diagnosed. I had an emergency surgery for an ovarian cyst torsion. That’s when...

I have been living with endometriosis for the last 15-20 years. I have been desensitized from all sorts of painkillers due to the frequent use because of my endo pain...

I’m 33 & endo has ruined more days of my life than I can count. I had my first cyst when I was 11 years old. I lost my left...

I had painful periods from age 20 on. It was 1980’s. For years, like so many women, my symptoms were denied, minimized. In my 30’s symptoms became excruciating. I sought...

16 years of pain is too many. Years filled with invalidation and dismissal. “It’s all in your head.” “Abby, you’re just sensitive.” “Everyone else has a period and they’ve learned...