Combatting Hereditary Fears for My Daughters...As I’ve gotten older and finally been able to manage the “worst” of my endometriosis symptoms, more and more I find myself thinking about my daughters. Just getting to the...reactionscomments
Surgical Menopause (endometrioma/bilateral oophorectomy)...Hi everyone! I lost my L ovary in 2021 due to a long undiagnosed endometrioma that ruptured. I now have a growing endometrioma on my remaining ovary and am looking...reactions10repliesCopingSurgeryTips & Advice
What should I expect from consult?...Hi everyone, I recently had a transvaginal ultrasound to investigate ongoing cramping and spotting throughout the month. Some background: I had an ablation 3 years ago due to heavy periods...reactions1reply
Long period?...Hi all, I’ve not been diagnosed but have enough of the symptoms to suspect, am currently awaiting investigation but I wondered if anyone was in the same boat as me?...reactions2repliesCopingSymptoms
How to Get a Good Night Sleep With Endometriosis...Endometriosis can be a real pain – literally and figuratively. One of the most frustrating aspects of endo life is its impact on your sleep. Whether it’s a pain, hormonal...reactions4comments
Surgery pre-tip advice ...Just have a question,if I woke up with a chesty cough (asthma) do u think my surgery would be postponed in a week because of it ?...reactions2repliesSurgerySymptoms
Flawed Pain Scales: What to Do When Emojis Fail to Describe Your Pain...When I last visited the gynecologist, I waited for my doctor in the exam room. On the door, I saw a poster. "How are you feeling?" the sign read. It...reactions3comments
Living with the weight gain caused by endo...I am wondering if they are any other ladies who can provide insight on how they have dealt with this issue. In my first 5 years of having the disease...reactions10repliesCopingDiet & NutritionExercise
Orilissa...Hi, I just saw a gynecologist that specializes in endometriosis & wants me to take Orilissa. Anyone currently taking it? Looking for pros & cons while on the medication. I...reactions7repliesTreatment
What Has Your Surgical Journey With Endometriosis Been Like?...Many people living with endometriosis have had to endure multiple surgeries in an attempt to try and correct some of the complications known to happen from endometriosis. To better understand...reactions2comments
On Progress When Managing Endo...I never thought I’d find the idea of lemon zest so joyous, but at the sound of my partner the other night saying, ‘I think I’m going to try adding...reactions1comment
Any advice . . . UK based...Hi all, I guess I’m here for some advice or just to know I’m not alone as I feel like I’m completely alone at the moment and either doctors don’t...reactions1replyCopingMental HealthTips & Advice
Surgery solo tips...Due to Covid restrictions,I’m not aloud a support person to sit with me before/after surgery at the hospital to have my first Laparoscopy surgery for endo in 2 weeks as...reactions15repliesDiagnosisCoping
How do people cope ?...How do people cope with the pain,fatigue and other signs of endo especially when you flood ur period products like a pad especially out in public/work....reactions8repliesCopingEndo BellySymptoms
Four Things I Have Learned From Endometriosis...Living with endometriosis hasn't been a pleasant ride if I am being completely honest. I've had too many days where I wish life would just end. As scary as it...reactions2comments
cramps worsen when i smoke weed...Hello, I'm 21 and i started displaying endometriosis symptoms about 4 years ago, have yet to see a gynecologist about it. it started with passing out and vomiting and intense...reactions2replies
The Emotional Side of Endometriosis...Endometriosis patients understand how difficult the physical symptoms of the disease can be. Those who have endometriosis, on the other hand, are aware that the emotional burden of living with...reactions1comment
Stronger in Endo...In 2008 when I was 12 years old, I started to feel the endo signs, but it was mild and I thought it's time for me to have my menses...reactions4comments
Unpacking Internalized Ableism...When I began my chronic illness journey, I hadn’t heard about internalized ableism, but I wish I had. I might have avoided the many times I pushed my body and...reactions1comment
Questions ...Hello! I'm Amy & new here. What a warm & caring community you all seem to be! I've been dealing w/ issues (obviously) & totally new to all of this...reactions6replies
