I Got LuckyMy female pediatrician wrote off my chronic lower abdominal pain as muscular or "in my head", and I walked around from ages 14-18 terrified that I had a tumor growing... By katiem1221 min readBookmark for laterReactions 0 reactions Comments0 comments
Previously Little Known EnemySo to start off, I want to make clear that I have not personally been diagnosed with endometriosis. I have many of the same symptoms as women that I know... By PrincessKM1 min readBookmark for laterReactions 0 reactions Comments0 comments
Painful Periods....So What?I can fully remember my first period. I was 10 years old on a plane coming home from my grandfather's funeral. The day of I was crouched in a pain... By sarahcorradino2 min readBookmark for laterReactions 0 reactions Comments1 comments
I'm The Rare Occasion of EndoI pretty much going to make this short. I have it all throughout my body. My liver, kidneys, bladder, bowels, lungs, muscles, pelvis, and pretty sure in my heart but... By Endlesspain1 min readBookmark for laterReactions 0 reactions Comments0 comments
New To The CommunityI was diagnosed with Stage 4 Endometriosis in 2020. I have had painful periods and bowel problems since I was 12 years old and told my doctors for years about... By Shai19952 min readBookmark for laterReactions 0 reactions Comments5 comments
Be a VOICE Not an EchoPart 2: I finally saw my third OBGYN. My old one I had to leave because he was not listening to me let alone they started to ignore me because... By Harlee1 min readBookmark for laterReactions 0 reactions Comments2 comments
Interdisciplinary Chronic Pelvic Pain ProgramI live in B.C, Canada and was accepted into the Interdisciplinary Chronic Pelvic Pain Program through the Centre for Pelvic Pain and Endometriosis clinic at B.C Women's Hospital last year... By Ray Li2 min readBookmark for laterReactions 0 reactions Comments5 comments
Be a Voice NOT an EchoDisclaimer: This story briefly mentions sexual assault by a partner. If you or someone you know has been a victim of sexual assault, please call the National Sexual Assault Hotline... By Harlee3 min readBookmark for laterReactions 0 reactions Comments1 comments
What Sex Life?When my husband and I first started dating 10yrs ago, we had 6 months before my health took a dive. During that, we had sex a lot. Then came IBS... By Ray Li1 min readBookmark for laterReactions 0 reactions Comments5 comments
Still Alive to Try to SmileI was found on the floor 2 weeks ago by my boyfriend after he got off work. He didn't know how long I was down there, and I was still... By keturahcurry1 min readBookmark for laterReactions 0 reactions Comments2 comments
5 Things That Make Endometriosis So UniqueI remember feeling so incredibly relieved when I received my diagnosis of endometriosis. Naively, I thought: "it's over". I knew going into it that excision surgery was not a cure... By Morganne Skinner RN4 min readBookmark for laterReactions 0 reactions Comments1 comments
The Long Road to Stage 4 EndoLike many others here, my story begins with painful periods. One of my clearest early menstruation memories is walking between classes in junior high and clutching my abdomen while leaning... By Katrina Martin6 min readBookmark for laterReactions 0 reactions Comments2 comments
Naming Ceremony for MiscarriagesIn 2007, I ended up having two miscarriages, both times I did not know I was pregnant. This was devastating for me and something I ignored for a decade because... By Ray Li1 min readBookmark for laterReactions 0 reactions Comments2 comments
Unheard JourneyAn endometriosis journey can be described as trailing down a long dark road without any maps, tools, or light to help guide the way. A journey without being understood or... By Marisol Velez3 min readBookmark for laterReactions 0 reactions Comments2 comments
More surgeriesHey everyone. My name is Megan! I was recently diagnosed with endometriosis this year after having surgery. They stated my endometriosis completely close my fallopian tubes and I also had... By Riddlemethis191 min readBookmark for laterReactions 0 reactions Comments2 comments
No, That is NOT Just a Normal Part of Being a WomanEver since I was 12 and started my period, I knew my lady parts never worked correctly. My periods were painful and irregular. I remember laying on the couch with... By Ab3122 min readBookmark for laterReactions 0 reactions Comments2 comments
DetouredI had this dream of being a Rockette someday. I danced for 12 years, struggled through the pain, pushed myself through the judgment of others; "It's just cramps. We all... By LifeHasDetours1 min readBookmark for laterReactions 0 reactions Comments1 comments
I Thought This Was NormalI had always thought that my periods were normal. They were regular, I didn't think they were heavy, and everyone said that periods were supposed to be painful. I didn't... By Omra2 min readBookmark for laterReactions 0 reactions Comments1 comments
This Pain Isn’t NormalI remember one February seven years ago I had the worst period I’d ever had in my life. This was after two kids, and doing research I found out this... By jackiemcg272 min readBookmark for laterReactions 0 reactions Comments1 comments
My Story... Is It Endometriosis?Ok so I got my first period really young. I remember it was right before Christmas and my mom was so upset. I know periods were supposed to be uncomfortable... By Mrowkaser4 min readBookmark for laterReactions 0 reactions Comments2 comments