The Struggle is Real

By mbrjlsm

1 min read

I have always had heavy periods since I was 12 years old. I was aware that I could have endometriosis since my Mom had it really bad and my Aunt. I started getting sicker and sicker each month I got my period. It got to a point where I was throwing up blood. My doctor started me on an experimental drug, but that ended up causing ocular migraines. I continue to battle each month. The cramping, heavy bleeding, throwing up, bad migraines, body aches, chest pains, etc. Will end someday.

Share your story

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Endometriosis.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Join the conversation

Please read our rules before commenting.

Keri Wiginton Member
I'm so sorry to hear you're still going through so much, and that your medication caused more side effects. I hope that you continue to search for a doctor who can help your symptoms. If you haven't already, I'd suggest asking your doctor about non-hormonal medication that may relieve some of your symptoms — nausea, migraines, period pain, heavy bleeding. An endometriosis specialist may be able to give you better advice than other OB/GYNs. And you can search for one through the iCareBetter website or Nancy's Nook's website or Facebook page. I'll leave some articles below in case they might be helpful. Please keep us updated on how you're doing. And reach out anytime you have questions. We're here to help! - Keri (endometriosis.net team member) https://endometriosis.net/living/manage-symptoms https://endometriosis.net/living/symptoms-experiences https://endometriosis.net/living/period-pain-treatment
Kimberli Davino Member
<inline-mention username="mbrjlsm" user-id="2053836"/> just wanted to say, I am so sorry you have been through such a hard journey and not finding any relief. I agree with everything Keri said and left though. Do check for an endometriosis specialist if you have not already and take a look at those articles. Hoping you do find some answers and relief dear warrior. Do know this, we are always here for you so never hesitate to reach out and message us. How have things been going since you last posted this? -Kimberli (advocate) 
1. slh11192 Member
 <inline-mention username="Kimberli Davino" user-id="2055071"/> Thank you. I am not well after being nearly fatally misdiagnosed by my Nancy’s Nook surgeon who claimed she was trauma informed and kind (she was neither, she gaslighted me while her hand was inside my vagina) . It has been 2 years since my vagina was operated on and I never received a post op appointment or even had one phone call returned, despite numerous attempts to contact my former surgeon about the complications and leaving multiple messages about the complications and receiving a post op appointment. Once my surgeon realized I did not have muscle spasms or anxiety, she just stopped returning my phone calls and never performed a post op after major pelvic and vagina surgery. She claimed I had muscle spasms and delayed treatment for more than 8 months when I had a necrotic ovary from untreated torsion and ruptured cysts. No, I am very very not ok. I interviewed this person to be my surgeon and they lied to me and abused me. I filed multiple formal complaints, as did my spouse, and they were ignored and deleted. No, I am very very very not ok, especially knowing this person is still working with women after what was done to me and that people are actively recommend this dangerous person as a surgeon.
2. Kimberli Davino Member
 <inline-mention username="slh11192" user-id="2059775"/> I am so very sorry this happened to you and was your experience. I wish I could hug you and take it all away. It is very angering that no one was able to do anything about this for you. I just have no words 🙁 <3 -Kimberli (advocate)