My Uterus and Endometriosis Ruined My Life

By Sarah Seers

1 min read

I am 40 & childless because of this insidious condition, devastated isn't the word l just can't seem to get over the childlessness. I have suffered since l was 11 from crippling pain & heavy flow and have been visiting varying GP's, hospitals & clinics since then. I only received my diagnosis at 38 & really not much could be done as l am stage 4. One round of IVF failed & given a 7.5% chance of it ever succeeding with a hefty price tag. Husband wants to "draw a line under it" but the compulsion in me to be a mother won't die off. I still have uncontrolled pain & symptoms & have been advised hysterectomy is the realistic next step, which to me seems so brutal. I am still trying different treatment methods with the latest being gabapentin which a week in isn't working & has uncomfortable side effects. Some days l don't see the point & yet l get up & carry on.... everyday l think why me...its soul-destroying

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Kimberli Davino Member
Oh Sarah <3 I am so sorry + saddened to hear of everything you are dealing with. But I hope you know this; YOU are so strong and such a warrior. I know there have been so many times I wondered, what's the point. But I get up and carry on. And I am proud of you for continuing to fight, too. Endometriosis does take so much from us. I know IVF is so expensive 🙁 I hate that they make it that way. It isn't fair. But if you do decide to try again, don't give up hope. I know this is not always the case and everyone is different of course, but I have heard many other stories, including those of my friends, who had failed IVF after failed IVF and then bam, it happened! Have you seen an endometriosis specialist? If not, they also may be very helpful towards next steps and guiding you. I know hysterectomy is usually what many doctors suggest. And it definitely is a scary, hard decision to have to make. So, if you can get some other opinions before needing to make that decision, that may be helpful. I know not everyone has access to second opinions, which is also something I think is not fair. There needs to be more options for us <3 That's for sure. If you haven't checked it out yet, look at Nancy's Nook- it's a FB group. She lists endometriosis specialists you can search for in your area and surrounding areas. Just know, you are not alone. So many of us are in that same exact spot with you and we feel for you. So, reach out anytime you need, because we are here for you always. Sending big hugs and so many good thoughts your way <3 -Kimberli (team member) 
1. Sarah Seers Member
 <inline-mention username="Kimberli Davino" user-id="2055071"/> Thanks for your kind reply, finally saw an Endo expert Thursday & they have put me onto Prostap with a view to a full clear out in 3 months, lm getting on with things & although l have been told things will get worse before any improvement this is a positive l think?