My Endo Journey

Last updated: March 2022

I was 22 when I was actually diagnosed with stage 4 endometriosis. I had large endometriomas deep into my bowels and ovaries. I had an exploratory laparoscopic which confirmed deep endometriosis and fallopian tubes in bad shape.

My first surgery

Had my first surgery and removed a fallopian tube and many endometriomas. We tried birth controls and lupron and depot and norethindrone and many other medications during this time to see what could work. Not much helped with the pain.

Where I am today

Eventually had another surgery removing half of my ovary and crushing my dreams and the rest of my fallopian Tubes. I was on Orilissa. Things were going well then my insurance decided I could not be on this med anymore. I had another surgery to remove the rest of my ovary and large endometriomas. Now on lupron again and going back through meds I was already on since insurance won't approve Orilissa again.

By providing your email address, you are agreeing to our privacy policy.

More on this topic

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Endometriosis.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Join the conversation

or create an account to comment.

Community Poll

Has anyone ever said the following to you about your endometriosis?