"Sugar Alcohols" VS sugar...I enjoy a "sugar free" dark chocolate syrup by Torani in my morning cold brew coffee. 14 grams of Sugar Alcohols yet 0 grams of sugar. What is the impact...reactions1replyDiet & Nutrition
How to Eat Well for Endo if You’re a Busy Person...One of the biggest barriers I see endo clients facing when it comes to managing endo is time. Most people feel overwhelmed by life and endo as it is, without...reactionscomments
Pain during flight ...[miscarriage triggerwarning] Hello, This year I was diagnosed with peritoneal endometriosis due to an ectopic pregnancy. Since then I have felt like they did not find all of my endometriosis...reactions1replyPelvic PainTravelTips & Advice
Has Visanne worsened constipation for anyone? ...I have recently returned to an ONGYN for recurring endo symptoms, worsening abdominal pain and constipation, and ongoing pain with urination). An ultrasound and CT found a new cyst on...reactions1replySide EffectsPelvic PainTips & Advice
Hysterectomy ...Hi all, I hope you are well. I have recently been diagnosed with stage 4 endometriosis (after years and years, think unfortunately most of us have been there) My surgeon...reactions1replyHysterectomy
Tired of diet advice and all sorts of time-consuming expensive “therapies”...I’m tired of trying to live s life of treating my body like it's a finicky thing. I like to have fun. I do not enjoy alcohol restrictions (though I...reactionsrepliesDiet & Nutrition
Endometriosis and Post Menopause ...Mirena coil for over 14 years, no period in all that time but worked really well for endo. Blood tests confirmed menopause and Mirena removed was 53 years old. Now...reactionsrepliesPelvic PainEndo BellyFlares
Surgeons in NYC area...Hi, anybody willing to share recommendations/their experiences with endometriosis surgeons in the NY metro area? I'm just starting this process so any help is appreciated!...reactionsrepliesHealthcare TeamSurgeryTips & Advice
Endo and GI issues...Hi all, I was diagnosed with endo coincidentally by my surgeon who saw lesions during surgery to remove my gallbladder. Before that, I was diagnosed with IBS due to severe...reactions10repliesDiagnosisSymptomsTips & Advice
Oral progesterone ...Hi just wondering if anyone has been prescribed oral progesterone to help with pain? My gp thinks it will really help but unsure if I want to take it or...reactions2replies
10 Years of a Meaningful and Fulfilling Relationship Alongside Endometriosis...As my partner and I approach ten years in our relationship, a relationship that has been largely directed by the challenges and management of endometriosis, I thought this was a...reactions2comments
In need of advice - Dienogest treatment ...I was diagnosed with endometriosis back in april this year and they have found 2 chocolate cysts on both of my ovaries, one measuring 4 cm and the other 5...reactions2repliesTreatmentTips & AdviceDiagnosis
Education ...How do you allow women to find information about new products that are available that may be a potential solution to some issues that are causing the problems...reactionsreplies
😱 how much 🩸 blood is just too much ?...I’m at my wits end- So I have stage 3 endo.had surgery about 4 months with little success with how heavy and clotty it is-although pain is settle slightly. I’m...reactionsrepliesCopingDepressionSymptoms
Bending over...Hello, I am 35 and have had the beastly endometriosis for 12 years. My Drs have been managing my symptoms by basically putting me in to a sudo early menopause...reactionsrepliesSymptoms
Best treatment options...Hi there, I have recently had an MRI and they found cysts on both ovaries plus womb struck to bowel and bladder!!! Stage 4 too They have suggested Dienogest, GNRH...reactions4repliesTreatment
Blood in urine...Hello, I had a recent urine test down and the doctor found blood in my urine. Has anyone else had this? I have had this before and they never found...reactionsrepliesAwarenessSide EffectsSymptoms
Non stop bleeding . Need advice...Hi, Hope all is well. It's been over a month since I started bleeding and I have stomach pains, abdominal pain,back pain,severe nausea and diarrhea. I have had a ultrasound...reactionsrepliesAwarenessCopingDepression
Non stop bleeding . Need advice...Hi, Hope all is well. It's been over a month since I started bleeding and I have stomach pains, abdominal pain,back pain,severe nausea and diarrhea. I have had a ultrasound...reactions1replyDiagnosisCoping
GnRH agonists...Has anyone ever been offered GnRH agonists injections and HRT. What are your thoughts on this Or what are your stories if this is a treatment you have tried. Thank...reactions1reply