IBS: The Surprising and Frustrating Symptom of Endometriosis...In our Facebook group, we had a discussion about the most frustrating endometriosis symptom. There were the usual suspects - flare-ups, fatigue, back pain, leg pain - but the one...reactionscomments
Getting Diagnosed With Endometriosis Is Emotionally Complicated...In the UK, my home country, it still takes a whopping 7.5 years to get diagnosed with endometriosis. It is a lengthy process that demands a lot of resilience from...reactionscomments
Others May Not “See” It. But I Feel It....During Invisible Illness Awareness Week, we want to recognize and shed light on all those affected by an illness that may go unnoticed despite the major impact your illness has...reactionscomments
Missed Period After Stopping Progesterone-Only Birth Control...I was taking progesterone (Micronor) for two years and got off a month ago. I got my period after stopping the medication so technically I had my period twice last...reactions3replies
Endometriosis Symptoms in Menopause...I am new to this site and forum. I was diagnosed with endometriosis during perimenopause through laparoscopy. I have now been in menopause for the past 6 years, and have...reactions5repliesLaparoscopySymptoms
Survey: Do Endo Patients Regret Excision Surgery?...I finally scheduled a visit with an excision specialist. I'll have to make a 5-1/2 hour drive to get there, so he's already booked me for 3 days. The dates...reactionscomments
Do I have endometriosis?...Hello! I’m 21 years old. For the last three months I have had excruciating right sided pelvic pain, I did all of the right things... I got a CT, which...reactions2replies
Post Surgery Abdominal Binder Recommendations...Hello All, Need recommendation on which Abdominal Binder to purchase post robotic myomectomy/ laparoscopy/ endometriosis surgery. Hospital provided: “Brand: “dj Orthopedics, LLC, Size: Universal 30”-45””. I’ve been wearing it for...reactions2repliesTips & AdviceSurgery
Trying (and Quitting!) The Mini Pill in the Hopes of Treating My Endometriosis...Like many of you, endometriosis isn’t my only chronic condition. I also have psoriatic arthritis and migraine disease. Because some of my migraine attacks are accompanied by an aura, neither...reactions9comments
Are you living with both IBS AND endometriosis?...Many women living with endometriosis also suffer from GI issues. And a lot of these GI issues from endometriosis, are similar, if not identical, to those of IBS. Please join...reactions5repliesComorbidities
Endo related Ovarian Cysts Pain...Hello all! I’m new here. My name is Louise and I am 22 years old. I was diagnosed with endometriosis last year after a diagnostic surgery. Since then, I’ve been...reactions1replyPelvic Pain
Hormonal Treatments for Endometriosis...Women who are diagnosed with endometriosis are often prescribed hormonal treatments to help manage their condition. But what do these drugs really do and are they effective? It’s important for...reactionscomments
My Story...Need Advice...Hello , my name is Demi I am 27 years old. I started my cycle at the age of 9 , the pain has always been unbearable to the nausea...reactions2comments
Have you tried a new therapy or treatment recently? How's it going?...Our endometriosis community would love to hear from you & your experience(s)! Have you recently tried a new therapy or treatment? If so, how is it going?...reactions4repliesTreatment
The Complications with Testing for SIBO...Testing for small intestine bacterial overgrowth isn’t necessarily straightforward. Before you consider ordering an at home test, it’s helpful to understand the limitations and nuances of testing so you can...reactionscomments
Infertility...Yes I have lots of experience with infertility. We had one baby 2 years ago from a successful IUI after several months of treatments. Currently undergoing another cycle of IUI...reactions8repliesInfertility & Pregnancy
How I Deal With Painsomnia...I learned about "painsomnia" from Dawn Gibson, a fellow health advocate who writes for AnkylosingSpondylitis.net. Like the name suggests, it's pain that keeps you up at night. Gibson and I don't...reactionscomments
Desperately in need of guidance and advice...I’ve had ovarian cysts for years and super heavy periods. Every doctor I went to just blew me off and said that cysts were normal. Until January of this past...reactions7repliesInfertility & Pregnancy
Navigating Toxic Relationships When Living With Endometriosis...As a human being, I am supposed to be a social animal. However, when I am suffering from a painful endometriosis flare-up, there is very little social about me. Yet...reactionscomments
