Is pain in one or both legs common?...I have had hip and thigh pain for about 10 years during my period, but now I have pain from hip to toe. Although I have been reporting issues for...reactions6replies
My Story...Hi I have had endometriosis and cystic fibroids since the age of 13, when I first started my period. I am now 53 and still getting periods, now every 2...reactions3comments
Has anyone had a laparoscopy & it not help the pain?...Hi there. I new to this forum but I’m so happy I found it! I was wondering if anyone has had their endometriosis removed and still had pain in the...reactions4replies
Could I Have Endometriosis On My Appendix?...Endometriosis is a condition in which tissue similar to the endometrial lining grows outside of the uterus. It often grows on nearby reproductive organs like the ovaries or fallopian tubes...reactions3comments
I’d really like to understand you more!...Hi guys, I’m trying to create a wellness service that caters for people with chronic pain or illness, and I’m especially keen on supporting those with endometriosis because I’ve been...reactions1reply
Want answers but worried about surgery...I'm 23 years old and have not officially been diagnosed with Endo. My OB is an endo specalist and says the only way to truly diagnose it is with surgery...reactions18repliesFlaresSurgery
7 Tips for Post-Surgery Recovery...I've had 5 laparoscopic surgeries to date, and, over the years, I’ve picked up a few tips for the recovery period that follows. Here's some things that might help you...reactionscomments
More Teenage Girls Have Endometriosis Than You May Think...Endometriosis is a condition in which tissue similar to the tissue lining the uterus (the endometrium) grows outside of the uterus. Doctors believe the condition affects more than 11 percent...reactionscomments
Take the Connected Health Survey! (now closed)...The Connected Health Survey is now closed. Thank you for your interest! In the digital age, there are so many devices, websites, and technologies related to health. From fitness trackers...reactionscomments
Confused by symptoms...Hi everyone, I'm 31 and have always had very heavy and painful periods that for the last 3-4 years have been every 3 months (doctors told me this was just...reactions2repliesPelvic PainSymptoms
Are These Weird Symptoms Caused By Endometriosis?...As I've entered my late 30s, my pre-period symptoms have gotten pretty bizarre. I can't tell what's causing them, but experts think endometriosis-related pain is neuropathic and neuroinflammatory. That means...reactions18comments
Do I have endometriosis? What do I do now?...Hi everyone, this is the first time I’m posting on here. I have been suffering for a long time and I’m looking for advice, help, conversation... I have been back...reactions1reply
Taste of Motherhood...As somebody who has had stage 4 endometriosis since I was 14, I have been aware of potential fertility issues for an extremely long time. This did not mean that...reactionscomments
Could this be Endometriosis?...I’m 19 years old and I’ve been struggling with my period since April of this year. I stopped taking birth control and my periods got extremely worst but not cramps...reactions12replies
HRT at 34?...Hi, Can someone please advise how they got diagnosed with endemetriosis? I had a video consultation yesterday with a consultant and told her all my symptoms and history. She said...reactions1replySymptomsDiagnosis
Navigating Insurance… Without Losing Your Mind...Living with three autoimmune diseases and a long history of debilitating migraines, my medical insurance is on speed dial. Did the medication get approved? Did you receive the pre-authorization? How...reactionscomments
Is It Perimenopause Or Just My Endometriosis?...As an endometriosis patient, I have lived with menstrual irregularities all my life. And I am not alone in this. Ask anyone with this disease and they will list a...reactionscomments
Constant Bloating 24/7 For Years...Hi all! I think we all get used to living with things and accept them as normal. I have endo and had surgery about 7 years ago to clear our...reactions4repliesEndo Belly
Night sweats, Light headed (dizzy) and Memory Loss...Hi everyone, I’m seeking advice please. I haven’t been diagnosed yet but do have an appointment in a few weeks with a endometriosis and pelvic pain nurse. I have obvious...reactions4repliesSymptoms
What is Frozen Pelvis?...Frozen pelvis is the most extensive form of deep infiltrative endometriosis. Endometriosis is a condition in which tissue similar to the lining of the uterus (called the endometrium) implants and...reactionscomments
