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Read conversations, start a discussion, and connect with others about endometriosis.

Bowel endometriosis

Hi all, I am currently in the process of getting diagnosed for what definitely sounds like bowel endo. I have a colonoscopy in just over a week to confirm if...

Painsomnia

Have you ever experienced Painsomnia (the inability to sleep or rest because your body is in pain)? If so, how did you feel? Were you able to get it resolved...

Looking for advice

Hi All I'm new on here and not sure if right place as I'm getting told from IBS to arthritis!! Over the years I have suffered from ectopic pregnancy, IVF...

Period

Currently waiting on surgery for endo. However haven’t had a period atall for over a month and a half. Is this common? Never happened to me before…...

Upcoming hysterectomy & terrified

Hi everyone, I have been in horrific pain on & off since October 2022. I have bilateral cysts on ovaries, fluid in my fallopian tubes, fibroids on my uterus, right...

Looking for good surgery stories / outcomes

I'm one week from my excision surgery and I'm pretty nervous. I've heard a lot of stories about complications and issues, but is there anyone out there with good ones?...

Incontinence

Hey so does anyone know if incontinence is linked to endo?? I’ve been waiting a while now for an op for endo but for years I’ve suffered with leakage.. laughing...

Feeling down

Afternoon, After being dignoise with endo stage 3 in April this year,with 3 years of trying for a child before surgery. After treatment with laropscopic. And further few months of...

Finally found a doctor who actually wants to treat me!

I have a family history of endo, adeno and fibroids. Pretty much every woman I’m related to has had a lap or hysterectomy. I started my period at 12 and...

Struggling

Hiya every1 I've suffered with endometriosis for 6 years I've ended up having a full abdominal hysterectomy in ovt 2022 I've started getting the exact same pains as I was...

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