My Endometriosis Story...Abdominal migraines, IBS, anxiety, constipation, ovarian cysts. These are the things doctors blamed for the abdominal pain I began having at 14 years old (1999). Every Doctor I saw had...reactionscomments
My experience...So I’ve recently got diagnosed with endometriosis, adhesions all over my abdomen and two large cysts on each of my tubes. It took months to get a diagnosis. In total...reactions5repliesPelvic PainDiagnosisTips & Advice
Brenda ...I had to have emergency total hysterectomy 1906. There was no information about endometriosis at that time. One day I started having severe abdominal pains, I went to the ER...reactions1reply
My endometriosis story...Hi I'm Brittany I'm 26, and I have had endometriosis since 2021. I have had 3 endometriosis surgeries and my tubes removed and ablation surgery and now I haft to...reactions5replies
When I was diagnosed....A little over a year ago, I found out I have Endometriosis. I didn’t know for the longest time. I was having cramps so bad I couldn’t even get out...reactions1reply
Cont ...I am just tired of the lies and would like some answers and tired of all the testing for Diabetes when they all come up negative like I was tested...reactionsreplies
OMG...I remember going to the doctor when I was 13 and she was telling me about what a period would be like and I was like OMG. I was a...reactions1reply
Getting diagnosed and coping till then...So I don’t know if I am in the right place really because I haven’t been diagnosed with endometriosis yet but I am on the waitlist to see a gynaecologist...reactions7repliesCopingDiagnosisTips & Advice
Did endo come back while you were on continuous contraceptives? ...Hello all, this is my first post here. I am 46 years old and was diagnosed with severe endometriosis eight years ago via laparoscopy. Lesions and adhesions were extensive and...reactions3repliesRecurrence
Surviving Endometriosis Is a Daily Victory...Sometimes, life with endometriosis can feel repetitive and depressingly dull. I am bleeding with no end in sight, taking painkillers like they’re sweets, and feeling deflated at the number of...reactions4comments
Should I go for private treatment because of lengthy waiting lists?...Hi, I have been suffering with endo symptoms for over 2 years and have finally got them to confirm my suspicions when speaking to Gynae. They have referred me but...reactions1replyTreatmentSurgeryTips & Advice
Things My HCP Have Said to Me When I Ask For Treatment...Have you ever been told any of the following when you requested a procedure or treatment for your endometriosis?: - You need a male partner to sign off on that...reactions2repliesAwarenessTreatmentHealthcare Team
Long period and ovulation...Hi, my period length usually around 5-6 days. However, these past few months, my period will last up to 10-15 days. There's not much bleeding but it still confused me...reactions1replyInfertility & PregnancyIntimacySide Effects
Brown discharge, dark red clots period...Hi, My periods flow have become short and unusual lately. I have brown discharge/ spots mixed with dark red clots, no red colored blood. Very light periods. Is this normal?...reactions2replies
Supporting Your Partner If They Need to Stop Working...Last week my partner asked me a question: What would we do for money if she had to stop working? I didn't have an answer. Both of us are self-employed...reactions6comments
Trying to figure out if I should do laparoscopic surgery...Hi everyone, I've just found this community and poured into reading the discussions here. It's been really helpful to gain insight in everyone's unique endo journey and the amazing support...reactions2repliesDiagnosisSymptomsTips & Advice
Moving or Road-Tripping With a Chronic Illness...Taking a road trip or moving cross-country when you have a chronic illness (or three!) may seem daunting. And granted, it is not easy. But with some pre-planning, you can...reactions6comments
Iron-Boosting Cookware...Do you struggle with low iron levels? We know that blood loss is real when living with endometriosis, and for some women, this can lead to low iron levels. Iron...reactions2comments
Hysterectomy...I just found out that I will need a hysterectomy. I waited to see the doctor for 2.5 hours to find out that they will be removing my cervix, fallopian...reactions5repliesDiagnosisHysterectomySurgery
Endometriosis Symptoms When I Was a Teenager...The Office on Women’s Health says endometriosis affects 11% of U.S. women, or people with periods, between the ages of 15 and 44. They say endo is most common among...reactionscomments
