Lifelong Illness, Recent Diagnosis...I’ve tried to write up my Endo journey a few times, and I end up writing so much that I don’t think anyone would want to read it. I’m sure...reactions7comments
It’s Me Against My Endometriosis...I’ve had 12 years taken away from me by stage 4 endometriosis. I had a hysterectomy yesterday and am feeling a little down so I just wanted to share what...reactions2comments
A Message For The Guys...Hi all, There is something that I would like to convey to all the men out there whose wives, partners, and friends are suffering from endometriosis. Guys, I need you...reactions4comments
Supporting Your Endo Health Through the Winter...To me, winter is a time for slowing down. This can often be helpful for those of us with endo because the fear of missing out and social demands that...reactionscomments
Pregnant After Being Told You Couldn’t Have Children...She was told in her early teenage years that she wouldn’t be able to have children. The OB/GYN wanted to “set proper expectations” for my friend, who was newly diagnosed...reactions2comments
Endometriosis Awareness Poem...Trigger warning: This work contains the topics of miscarriage, infertility and suicide. https://m.youtube.com/watch?v=Kj2Ut61xznU&t=14s Hey guys, I've written some poetry about endometriosis. I’ve been really anxious about sharing it because it...reactions1reply
Finding a New Care Team or Provider...We are all hopeful it never happens: finding a new care team. But inevitably, at some point during our lives, we will have to find a new doctor or team...reactions4comments
Hungry after periods?...I have been noticing that immediately when my periods end on the 6th or 7 th day am chronically fatigued with body ache plus immensely hungry.I have to feed myself...reactions8repliesDiet & Nutrition
What Happened When I Couldn’t Access My Medication...During the several phases of lockdown we faced with the Covid-19 pandemic, many of us struggled to access things we took for granted, like buying our favorite coffee beans or...reactions2comments
3 Eating Tips to a Healthier Holiday Season...The holidays can easily be viewed as a pass to ditch your healthy eating habits and indulge in all the goodies. While the foods taste good in the moment, they...reactionscomments
Trying To Get Pregnant...I was diagnosed with endometriosis in my early twenties. I was told if I ever wanted to have kids to start as soon as possible. Being single at the time...reactions8repliesDepressionCopingInfertility & Pregnancy
I Tried the Noha Device and Here’s What I Found...Too often, by the time the cramps start, we don’t have any energy to do much about them. I never feel like going to the store, and I pray there...reactionscomments
Lots of Feelings As I Turned 35...Happy-ish birthday to me, I turned 35 this September. I noticed that I was feeling pretty sad leading up to my birthday. There apparently was a lot on my brain...reactions15comments
Besides an OB/GYN, what kinds of doctors have helped you the most with your symptoms?...Endometriosis can cause body-wide symptoms, but there’s no single doctor who can treat all of these issues. People with endo often end up seeing many specialists to find relief. An...reactions4repliesComorbiditiesSymptomsTips & Advice
Why Chronically Ill and Disabled Friends Are Magic...I am not exaggerating when I say I’m not sure I would have gotten through the last nine months without my online chronically ill and disabled friends. Mainly because of...reactions1comment
How Support for My Partner Changes With the Seasons...The support that I offer my partner living with endometriosis changes throughout the year in response to the changing expectations and opportunities that present themselves. I support my partner by...reactions1comment
The Lessons I Learned Post-Diagnosis...As I write this, I am on my period. My back aches and my stomach hurts. During these flare-ups, I can't help but think about how endometriosis has impacted my...reactionscomments
Results of Lap ...I received my results from my lap, and on one of the result sections it mentions inactive pattern endometrium. Has anyone ever received this? Could someone explain it better to...reactions2repliesTips & AdviceResearch & Clinical Trials
Educating Your Partner About Your Hormonal Shifts...At 43 years old, I’ve had years of first-hand experience with hormonal shifts in my body. When I first got my period around 13 years old, I felt a little...reactionscomments
Suspected bladder endometriosis ...i’ve always had very heavy, painful periods since i started them at 12. endometriosis runs in my family. my mom had it and so did my aunts. i soak through...reactions7repliesSymptomsEndo Belly
