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Forums

Read conversations, start a discussion, and connect with others about endometriosis.

Unsolicited Advice

“Do a smoothie cleanse, it will get rid of the “toxic estrogen” in your body” "If you just lose weight and eat right, you'll be fine." "Everyone has pain with...

Urgency to pee when lying down

Hello, I’ve been pretty sure that I’ve had endometriosis for the last 4 years since I’ve been having painful menstrual cramps and painful sex after ovulation lasting through my period...

Endocrinologist

Does an endocrinologist play a role in your endometriosis care team? If so, do they lead your care or does your gynecologist? My gynecologist is now stepping down from being...

Brown discharge, dark red clots period

Hi, My periods flow have become short and unusual lately. I have brown discharge/ spots mixed with dark red clots, no red colored blood. Very light periods. Is this normal?...

Did endo come back while you were on continuous contraceptives?

Hello all, this is my first post here. I am 46 years old and was diagnosed with severe endometriosis eight years ago via laparoscopy. Lesions and adhesions were extensive and...

Different types of pain

I’m 43. I was diagnosed with stage 4 endometriosis in 2020 when I had a hysterectomy. The more I researched, the more all of my seemingly unrelated symptoms made sense...

Diagnostic Laparoscopy

Hello, I have been struggling with a number of symptoms for years and finally had my referral appointment today. I have been added to the waiting list for a laparoscopy...

Being diagnosed

Hi there, I’m not sure whether or not I’ve got endometriosis yet but it has been suggested by my GP. Going for a pelvic ultrasound next week. My symptoms are...

Getting diagnosed and coping till then

So I don’t know if I am in the right place really because I haven’t been diagnosed with endometriosis yet but I am on the waitlist to see a gynaecologist...

My experience

So I’ve recently got diagnosed with endometriosis, adhesions all over my abdomen and two large cysts on each of my tubes. It took months to get a diagnosis. In total...

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