Tell us about your symptoms and treatment experience. Take our survey here.

caret icon Back to all discussions

Endo Fatigue

Fatigue is experienced by nearly 3/4 of those with endometriosis.

Being tired and experiencing fatigue are two dramatically different things. Help us shed some light on what life with endo and fatigue is really like and how it truly impacts your life.

Do you experience endo fatigue? If so, what's your experience like? How would you describe it to someone that says "oh I get really tired too."

  1. It's like a mix of the onset of jet lag while simultaneously being asked to carry 100lbs of extra weight on your back, hips, lower abdomen down to your calves.

    1. That is a fantastic description. The heaviness, the dragging, the weight....I'm sorry you also experience this! ~Katrina, Endometriosis.net Advocate

    2. why is this description so accurate? You hit it right on the money. That is definitely how it feels. My husband always ask what's wrong and I always reply that I just feel heavy! My body is just weighed down and sometimes it is like I can't even move it! I hate you experience this too <3 -Kimberli (advocate)

  2. For me, it's been like trying to walk through cement that is not yet set, but is starting to harden. There is also an emotional component. I want to engage and be motivated and excited, and I just feel like a battery at the end of its life. No juice, no drive. ~Katrina, Endometriosis.net Advocate

    1. Definitely the emotional component weighs heavily too! I’ll try to engage but I am so not present and it ends up with me trying to remind myself not to be at war with my body, that’s it’s not something I should feel guilty or shameful about. But it’s hard for people to understand that I’m mostly only functional for about a week out of the month. It always feels like I’m playing catch up to the weeks when I’m not able to perform!

      1. I could not agree with this statement more. Sometimes I get 5 good days…maybe 10 to 12 if I’m really lucky. And I also struggle sometimes with feeling guilty about being tired or less than optimal, so thank you for sharing. This really helps me feel less alone. - Keri (endometriosis.net team member)

      2. yes absolutely agree with this. That emotional baggage that comes with it sure is heavy and very exhausting! And I understand that feeling of only have a few good days out of the month. People see those good days and wonder why I can't be that way the rest of the month. And there is just no answer for that because I just never know how my body is going to act or respond. I am in therapy right now to try and learn not to feel guilty with myself or hate my body, because right now, I sure do. Thank you for sharing all of this. Like Keri said, it sure does help make me feel less alone <3 I hope you know all of us are always here for you. -Kimberli (advocate)

    2. For me, it sort of feels like I'm underwater. Every movement is more difficult, keeping my eyes open is harder, and everything's just a little bit floaty and out of focus physically and emotionally.

      1. like being underwater. Another super accurate description. I am so sorry you feel this way too though 🙁 It isn't easy, that's for sure. But what keeps me going, is knowing I have all of you here. And I hope you know the same, that we are always here for you. Thank you for being here warrior <3 Sending you hugs. How have you been feeling lately? -Kimberli (advocate)

    Please read our rules before posting.