Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Tell us about your symptom and treatment experience. Take our survey here.

Forums

Read conversations, start a discussion, and connect with others about endometriosis.

New to endometriosis and maybe IC?

Hello! I'm 27 and I got diagnosed (not laparoscopically though) with endometriosis in 2021 December. I've been in constant pain for 4 months and I'm still waiting to start my...

Endometriosis and a vaginal onion smell

For about the last year I have had a vaginal onion smell. It’s not like b.o. it’s like freshly cut onions mixed with cat pee and marijuana. It’s just terrible...

Pediatric and Adolescent Endometriosis

Many of our community members have shared experiencing endometriosis symptoms as young children, many of them experiencing symptoms with their first period. We'd like to know, have you experienced endometriosis...

Getting diagnosed

Hi all I’m hoping for some support or some kind of reassurance! I have been to the GP after experiencing changes in my periods for the past 4 or so...

Endometriosis and the COVID Vaccination

Those who received a COVID-19 vaccine, did you notice your cycle changed at all after receiving it? If so, how did it change? Based on how the COVID vaccine affected...

bladder endometriosis

i’m a 16 year old girl. I’ve had severe urinary frequency for just over a year. i feel like i need to pee always. I can hold it and manage...

Endo and IUD's

I had lapro surgery back in 2016 for Endo. I have had an IUD for 3 years and in those 3 years I was period free. Since March of this...

Could we survive torture? (Inserting Humor here)

A couple of weeks ago, while on a drive to look at nature for my birthday, my husband and I started talking about pains I was experiencing. The stones in...

Pain in Spine

Last time I was at the gynecologist he said I has “some” endometriosis scarring and also diagnosed me with PCOS. after my third csection he said I had an unbelievable...

Question for those with (and without) bowel endometriosis

I have PCOS (which is very well-maintained at this point) and lately have been feeling pain with insertion on my period deep in my pelvis. I've also been dealing with...

Categories

Select a category to find topics that interest you.