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Read conversations, start a discussion, and connect with others about endometriosis.

Any advice . . . UK based

Hi all, I guess I’m here for some advice or just to know I’m not alone as I feel like I’m completely alone at the moment and either doctors don’t...

can you have endo even after a total hysterectomy?

In 1989 had a total hysterectomy. My Gyno. said that I would be cured and that it all would all be ok. Unfortunately year after year I still have problems...

Have you gone on a cruise?

Have you gone on a cruise with endometriosis? Do you have any tips or tricks to be prepared and enjoy a cruise despite endometriosis? Thanks - Amanda (team member)...

Besides an OB/GYN, what kinds of doctors have helped you the most with your symptoms?

Endometriosis can cause body-wide symptoms, but there’s no single doctor who can treat all of these issues. People with endo often end up seeing many specialists to find relief. An...

Severe pain in ovary after sex

I was diagnosed with endometriosis, adenomyosis and I do have endometrial cysts in both ovaries. I am scheduled for a hysterectomy with an excision specialist in August. For the first...

Loneliness and anxiety

Hello everyone! I‘m new to this community and I thought after I‘ve had lots of pain and confusion I would just try to reach out over here. I‘m not fully...

Doctor or endocrinologist recommendation?

Hello, Endo community! Has anyone worked with a good doctor or endocrinologist? I am looking to switch, and would love to work with someone with experience in endo and PCOS...

Endo Fatigue

Fatigue is experienced by nearly 3/4 of those with endometriosis. Being tired and experiencing fatigue are two dramatically different things. Help us shed some light on what life with endo...

Cysts

Hi! I’m very new to the whole endometriosis stuff and I’m indeed very lost since I can’t get any information and think it’s best to ask someone who has been...

Supportive Work Shoes?

Hi! Most of my endo pain manifests in my feet and legs - throbbing like I’ve been walking miles even when I haven’t, shooting pains, etc. etc. I work in...

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