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Read conversations, start a discussion, and connect with others about endometriosis.

Anyone else

I am 51 years old & have been dealing with endometriosis longer than I care to admit. I was diagnosed at the age of 28 when I could not get...

Post op advice

Afternoon, advice needed I’m about 9 days post op for Laparoscopy ,Hysteroscopy,d and c and tubal dye test. I am still experiencing shoulder tip,neck,rib pain. Migraine/dizzy spells and extreme fatigue...

IUD and Endo Help

Hi there. I’m sure this has been addressed before but anyway.. I have been having horrible pain for months. I have horrible cramps everyday, I am so fatigued and my...

Surgical Menopause (endometrioma/bilateral oophorectomy)

Hi everyone! I lost my L ovary in 2021 due to a long undiagnosed endometrioma that ruptured. I now have a growing endometrioma on my remaining ovary and am looking...

Any advice . . . UK based

Hi all, I guess I’m here for some advice or just to know I’m not alone as I feel like I’m completely alone at the moment and either doctors don’t...

can you have endo even after a total hysterectomy?

In 1989 had a total hysterectomy. My Gyno. said that I would be cured and that it all would all be ok. Unfortunately year after year I still have problems...

Have you gone on a cruise?

Have you gone on a cruise with endometriosis? Do you have any tips or tricks to be prepared and enjoy a cruise despite endometriosis? Thanks - Amanda (team member)...

Besides an OB/GYN, what kinds of doctors have helped you the most with your symptoms?

Endometriosis can cause body-wide symptoms, but there’s no single doctor who can treat all of these issues. People with endo often end up seeing many specialists to find relief. An...

Severe pain in ovary after sex

I was diagnosed with endometriosis, adenomyosis and I do have endometrial cysts in both ovaries. I am scheduled for a hysterectomy with an excision specialist in August. For the first...

Loneliness and anxiety

Hello everyone! I‘m new to this community and I thought after I‘ve had lots of pain and confusion I would just try to reach out over here. I‘m not fully...

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