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IUD and Endo Help

Hi there. I’m sure this has been addressed before but anyway..
I have been having horrible pain for months. I have horrible cramps everyday, I am so fatigued and my legs hurt and get tired so easily, my back hurts so bad and it’s so difficult to work. I had been having strange irregular periods. I went to planned parenthood and got everything done I could to figure out what was causing it. They found nothing on any of my ultrasounds etc and said I probably have endometriosis. They said I should get an IUD and it would eventually help the pain. I have had the IUD since April and have been on some stage of my period the entire time. I am still experiencing awful cramps and back pain. Does anyone have any tips or insight on when I will stop bleeding and start feeling better? I feel hopeless.

  1. Hi , goodness, I'm sorry you are experiencing awful cramps and back pain. Sending so many gentle hugs your way right now. We aren't medical professionals and unfortunately cannot give medical advice but I can speak to my own personal experience with an IUD. I got a low hormone IUD at the beginning of March for moderate cramping, hormonal mood swings, and heavy irregular periods that I was experiencing for a while. The first month and a half for me personally, were pretty painful (cramping, really quick short stabbing pains in my uterus especially if I moved while seated too quickly, and just felt super tender and achey all around my abdomen and uterus) and have since gotten milder and milder. I also experienced super irregular, however definitely lighter, periods during those first few weeks. I have started experiencing some lower back pain which I never really had before this IUD and it seems to come and go when my cycle would typically start. That has just been my personal experience with it but honestly, and I know everyone says this but it is true, everyone's body is so different and reacts so differently to medications. I wanted to leave some articles here for you to check out if you'd like (seriously no pressure - there are quite a few because I wanted to address a few things you mentioned above) while we wait for others in the community to chime in with their experiences.

    https://endometriosis.net/clinical/iud
    https://endometriosis.net/symptoms/leg-pain

    https://endometriosis.net/symptoms/fatigue

    https://endometriosis.net/diagnosis



    I so wish I could give you a big hug right now . Please know that you have a whole community of support here for you whenever you need it. I'll be thinking of you!! 💛 Kayleigh, Endometriosis.net team

    1. Thank you!

      1. Morning, ! I wanted to let you know that I posted this on our facebook page in hopes that more community members would see and comment - and they did! Just wanted to let you know that we're all thinking of you and sending lots of love and support your way. If you want to see the thread, you can view it here: https://www.facebook.com/EndometriosisDotNet/posts/1203910140053050. 💛 Warmly, Kayleigh, Endometriosis.net team

    2. Thank you very much!

      1. anytime! Glad we can help in any way! We're all in this together! 💛
        Warmly, Kayleigh, Endometriosis.net team

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