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Read conversations, start a discussion, and connect with others about endometriosis.

Pain during flight

[miscarriage triggerwarning] Hello, This year I was diagnosed with peritoneal endometriosis due to an ectopic pregnancy. Since then I have felt like they did not find all of my endometriosis...

Desperate for some advice

I have been having irregular periods for 8 years before this my periods were very regular and heavy. I have been going back and forth to the doctors for 7...

Surgeons in NYC area

Hi, anybody willing to share recommendations/their experiences with endometriosis surgeons in the NY metro area? I'm just starting this process so any help is appreciated!...

Looking for good surgery stories / outcomes

I'm one week from my excision surgery and I'm pretty nervous. I've heard a lot of stories about complications and issues, but is there anyone out there with good ones?...

Unusual endometriosis symptoms

Can we talk about the unusual or less talked about symptoms of endo? I'm curious about anyones similar experiences. I have bladder endo as well and get severe burning, urgency...

Initial visit booked, advice

I had done an online consultation, back in October of 2021, to get started on the process to see if I have endometriosis. From then onward I kept booking and...

Period with endo

How much is normal bleed and clot size/quantity with a period with endo ? Has anyone period flow changed after endo surgery or barley any ?. Any advice ?...

What shouldn't you say to someone with endometriosis?

Sometimes people mean well and say things without really thinking them through. Other times, it can be ignorance of what life with endometriosis is really like. What has someone said...

Endometriosis Flares

What kind of symptoms do you typically experience when you have a flare-up? How do you handle your flares? Is there anything that helps you feel more comfortable during a...

Canker Sores & Endo - Help!

Hi Everyone, I'm using this as a last resort because I wanted to know if anyone else deals with the same problem. I've had endometriosis for years, but in the...

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