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Read conversations, start a discussion, and connect with others about endometriosis.

Unusual endometriosis symptoms

Can we talk about the unusual or less talked about symptoms of endo? I'm curious about anyones similar experiences. I have bladder endo as well and get severe burning, urgency...

Initial visit booked, advice

I had done an online consultation, back in October of 2021, to get started on the process to see if I have endometriosis. From then onward I kept booking and...

Period with endo

How much is normal bleed and clot size/quantity with a period with endo ? Has anyone period flow changed after endo surgery or barley any ?. Any advice ?...

What shouldn't you say to someone with endometriosis?

Sometimes people mean well and say things without really thinking them through. Other times, it can be ignorance of what life with endometriosis is really like. What has someone said...

Endometriosis Flares

What kind of symptoms do you typically experience when you have a flare-up? How do you handle your flares? Is there anything that helps you feel more comfortable during a...

Canker Sores & Endo - Help!

Hi Everyone, I'm using this as a last resort because I wanted to know if anyone else deals with the same problem. I've had endometriosis for years, but in the...

Anyone else

I am 51 years old & have been dealing with endometriosis longer than I care to admit. I was diagnosed at the age of 28 when I could not get...

Post op advice

Afternoon, advice needed I’m about 9 days post op for Laparoscopy ,Hysteroscopy,d and c and tubal dye test. I am still experiencing shoulder tip,neck,rib pain. Migraine/dizzy spells and extreme fatigue...

IUD and Endo Help

Hi there. I’m sure this has been addressed before but anyway.. I have been having horrible pain for months. I have horrible cramps everyday, I am so fatigued and my...

Surgical Menopause (endometrioma/bilateral oophorectomy)

Hi everyone! I lost my L ovary in 2021 due to a long undiagnosed endometrioma that ruptured. I now have a growing endometrioma on my remaining ovary and am looking...

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