Sleep is Healing...Did you know that the body goes through a repair process when you sleep? It's true. When you snuggle in bed at night and drift off to sleep, it's easy...reactionscomments
My Endometriosis ...I been on and off my birth control pills. I'm gaining whole lot of weight.. I wanna get off the birth control pills or any kind of birth control!!!!Is this...reactions1reply
Unusual endometriosis symptoms ...Can we talk about the unusual or less talked about symptoms of endo? I'm curious about anyones similar experiences. I have bladder endo as well and get severe burning, urgency...reactions11repliesCopingEndo BellyTips & Advice
Life Lessons From Living With Endometriosis...Living with endometriosis for 20 years has taught me a few important lessons. This life has taught me not to expect too much from other people. This is one of...reactionscomments
Ovulation ...Does anyone else have ovulation problems with their endometriosis? I’ve been doing ovulation tests for over a couple months now, and I don’t think I’ve seen one positive test. I...reactions4replies
How To Build an Endometriosis-Friendly Capsule Wardrobe...When I woke up last Monday morning, I could already tell it would be a bad day. I had bled through my pajamas during the night; my cramps made me...reactions4comments
Using Therapy to Cope Through My Chronic Illnesses...Endometriosis certainly plays a role in affecting us physically. But one of the most significant ways endometriosis affects many of us is mental and emotional. Sometimes, I believe those two...reactions4comments
Below the Belt Premiere: Advocacy for Endo...Earlier this month, my partner and I went to the London premiere of Below the Belt, the second film from the director of Endo What? Shannon Cohn, and produced by...reactions1comment
Weather and Endometriosis...Do you ever notice that your endo symptoms seem to flare during bad weather? Or maybe that your endo symptoms tend to be better or maybe worse in colder or...reactions5repliesWeatherSymptoms
Skin irritation in the pelvic floor ...Hey all, So about two years ago I've started having all sorts of problems with my pelvic floor (fissure, and some general overtighten pelvic muscles issues), all these are extremely...reactions2replies
Transgender Men and Endometriosis...One population that gets only rare mentions in endometriosis communities is transgender men. This can lead to individuals declining to seek support or gynecology care, which is a tremendous disservice...reactionscomments
When I’m Sick, Please Stop Saying This..."You look so good for someone who is sick!" "You hide your illness well. I would have never guessed you weren't feeling well." Have you heard those lines before? Most...reactions3comments
When You Don’t Agree with the Doctor’s Orders...Is plastic safe to put in your mouth? Since my diagnosis of endometriosis, I’ve tried to be mindful of my use of plastic. I don’t believe that any single use...reactions1comment
Blood clots ...Hello I was wondering if anyone else has/had anything similar, when I’m on my period I notice blood clots down the toilet, more recently I’ve noticed multiple smaller ones on...reactions3replies
My Retiring Endometriosis Specialist...One of the worst things you can hear when speaking with your specialist’s office is that your doctor is retiring. This news came as a massive shock to me. I...reactionscomments
Feeling lost....Hey...sorry in advance for an info dump but I'm in a pretty dark place right now and don't know where to go from here... I'm 28, had my first surgery...reactions1replyDepression
Pain post-op...Hi everyone, I’m hoping to learn more from others about their experiences with pain after keyhole removal of endometriosis. A couple of years ago, I had appendicitis which went undiagnosed...reactions2repliesPelvic PainSurgeryEndo Belly
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Validating Your Loved One's Experience of Endometriosis...March is endometriosis awareness month, and in past years I have written about raising awareness of the condition in groups that may not be exposed to it, such as men...reactionscomments
Doctor or endocrinologist recommendation? ...Hello, Endo community! Has anyone worked with a good doctor or endocrinologist? I am looking to switch, and would love to work with someone with experience in endo and PCOS...reactions4repliesHealthcare TeamDiagnosisTips & Advice