IBS: The Surprising and Frustrating Symptom of EndometriosisIn our Facebook group, we had a discussion about the most frustrating endometriosis symptom. There were the usual suspects - flare-ups, fatigue, back pain, leg pain - but the one...reactionscomments
Getting Diagnosed With Endometriosis Is Emotionally ComplicatedIn the UK, my home country, it still takes a whopping 7.5 years to get diagnosed with endometriosis. It is a lengthy process that demands a lot of resilience from...reactionscomments
Others May Not “See” It. But I Feel It.During Invisible Illness Awareness Week, we want to recognize and shed light on all those affected by an illness that may go unnoticed despite the major impact your illness has...reactionscomments
Survey: Do Endo Patients Regret Excision Surgery?I finally scheduled a visit with an excision specialist. I'll have to make a 5-1/2 hour drive to get there, so he's already booked me for 3 days. The dates...reactionscomments
Trying (and Quitting!) The Mini Pill in the Hopes of Treating My EndometriosisLike many of you, endometriosis isn’t my only chronic condition. I also have psoriatic arthritis and migraine disease. Because some of my migraine attacks are accompanied by an aura, neither...reactions9comments
Hormonal Treatments for EndometriosisWomen who are diagnosed with endometriosis are often prescribed hormonal treatments to help manage their condition. But what do these drugs really do and are they effective? It’s important for...reactionscomments
The Complications with Testing for SIBOTesting for small intestine bacterial overgrowth isn’t necessarily straightforward. Before you consider ordering an at home test, it’s helpful to understand the limitations and nuances of testing so you can...reactionscomments
How I Deal With PainsomniaI learned about "painsomnia" from Dawn Gibson, a fellow health advocate who writes for AnkylosingSpondylitis.net. Like the name suggests, it's pain that keeps you up at night. Gibson and I don't...reactionscomments
Navigating Toxic Relationships When Living With EndometriosisAs a human being, I am supposed to be a social animal. However, when I am suffering from a painful endometriosis flare-up, there is very little social about me. Yet...reactionscomments
Who Do You Share Your Fertility Journey With?Trying to get pregnant, especially with a history of endometriosis, is an uncertain road. There are a lot of unknowns and what if’s... the biggest one being "Will it really...reactionscomments
What My Endo Surgery Was LikeWhen my gynecologist told me that I needed surgery to alleviate my endometriosis symptoms, the only thing that calmed me was how matter-of-factly she said it. As if this was...reactionscomments
Could a Hernia Be Causing Your Pelvic Pain?For as long as I can remember, I have had some sort of pelvic pain. The type of pain that would just radiate down the legs. As a kid, I...reactionscomments
Workplace Accommodations for EndometriosisWhen we think of workplace accommodations, we often think that this means special chairs, or adaptable keyboards, or ergonomic mice. In the context of endometriosis, these don’t help that much...reactionscomments
Healthy Cheesecake... For Breakfast?This recipe is another of my favorites from Jess' cook book. It's named 'Birthday Breakfast Cheesecake' in the book as it's something we'll eat for breakfast on a special occasion...reactionscomments
Could I Have Endometriosis On My Appendix?Endometriosis is a condition in which tissue similar to the endometrial lining grows outside of the uterus. It often grows on nearby reproductive organs like the ovaries or fallopian tubes...reactions3comments
7 Tips for Post-Surgery RecoveryI've had 5 laparoscopic surgeries to date, and, over the years, I’ve picked up a few tips for the recovery period that follows. Here's some things that might help you...reactionscomments
More Teenage Girls Have Endometriosis Than You May ThinkEndometriosis is a condition in which tissue similar to the tissue lining the uterus (the endometrium) grows outside of the uterus. Doctors believe the condition affects more than 11 percent...reactionscomments
Take the Connected Health Survey! (now closed)The Connected Health Survey is now closed. Thank you for your interest! In the digital age, there are so many devices, websites, and technologies related to health. From fitness trackers...reactionscomments
Are These Weird Symptoms Caused By Endometriosis?As I've entered my late 30s, my pre-period symptoms have gotten pretty bizarre. I can't tell what's causing them, but experts think endometriosis-related pain is neuropathic and neuroinflammatory. That means...reactions18comments
Taste of MotherhoodAs somebody who has had stage 4 endometriosis since I was 14, I have been aware of potential fertility issues for an extremely long time. This did not mean that...reactionscomments