Hello all, I am finding myself here after another sleepless night and concerned about what my next steps will be - I was diagnosed a few years ago after living with stage 4 endometriosis and adenomyosis for the majority of my life. I am now 42, I have lived a very active life until I reached a point where I could no longer stretch or twist without internally pulling and tearing. I had a major radical hysterectomy at 40 removing everything (apart from my right ovary which was still viable) including my cervix. I had multiple large cycts removed in addition. I have no children, but believe I had a miscarriage in my late 20's - this is the first time I've ever spoken or written about it. I didn't realize after the de-bulking of my reproductive organs and my visible endo growths and lesions that had wrapped around my left kidney ureter and pulling down on my bladder that I would suffer extreme nerve damage in my lower back, abdomen, and legs. I've done pelvic floor therapy many times - about to be going back for aqua therapy, I have routine abdominal wall injections every three months and rotate between steroidal and localized anesthetic which block pain receptors in my illioinguinal nerve. I have recently been referred for pelvic floor injections which I am very much looking forward to as my abdominal wall injections don't seem to be working as well as they did when I first began having them a year ago. My pain is so bad that I frequently (now daily) have dissociations caused by my pain - I have been on a prescription of opioids for the past three months that help reduce my dissociations but this is simply a tool and I don't want to be on them long term, I am trying to get in to see a pain psychologist, and consistently do art therapy which reduces my pain as well, but when it is in a major flare I am at such a loss and the pain overwhelms me. I have begun using a cane to help stabilize me as I walk, but my life activity has been significantly limited to what I can do which is not much these days. I have done everything from anti-inflammatory diets, every natural remedy known to man (that's probably a slight overexertion) to cbd rubs and edibles but because of my medications can't do the thc anymore - I have several comorbidities. I am currently on 120 mg of Duloxetine which helps with my nerve damage, my major depressive disorder, and my functional neurological disorder - drop attacks, lack of muscle control, and seizures, I am also on 15 mg of norethindrone, and propranolol. When not taking the opioids I take clonazopam sometimes to help reduce my panic attacks. I was the girl who never took anything but the occasional ibuprofen and primarily used naturopathic and homeopathic remedies. I have learned to lean on an allopathic approach in addition to naturopathic and osteopathic medicine in combination. I am scared as I can't seem to escape my pain and my dissociation have grown more intense. I have a therapist and I am becoming a mental health practitioner myself. I am deeply saddened by what has transpired and while I try to be so optimistic I am struggling. Any encouragement, tips, suggestions and advice are welcome. I am eager to learn of things that perhaps I have not tried before and pray for sustainable relief daily.