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For those with DIE, can bowel lesions cause symptoms even when there's no actual bowel obstruction?

've been having this weird feeling of needing to pass stool even after I've just gone, along with sharp pain deep inside whenever there's gas moving through. Some days I'm constipated and other days I have to rush to the toilet. I'm trying to understand if this happens because the bowel is being pulled by adhesions or if the lesions have actually grown into the bowel wall. Has anyone had these symptoms with DIE and found out what was causing them on MRI or during surgery?

  1. I can relate to the sharp pelvic pain part! Before my surgery, I had days when even sitting or bending was uncomfortable, and the bloating made everything worse. What I've learnt with endo is that you dont necessarily need a complete bowel obstruction to have symptoms. did your MRI show adhesions around the rectum or actual bowel wall involvement?

  2. That constant feeling of needing to go even after you've just been sounds incredibly uncomfortable! The sharp pain when gas moves through is particularly concerning. I've dealt with pelvic pain from adenomyosis, but not bowel DIE, so I can't speak from experience about adhesions versus bowel wall involvement. I know MRI can help identify deep lesions, but it may not show every adhesion. Have you had an MRI specifically looking for bowel endometriosis, or are you still trying to get those symptoms investigated?

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