Stories

So I’m new to the group, my whole family (women) have all had hysterectomies before age 32 due to endometriosis. I’ve always struggled from terrible periods and a few miscarriages...

Endometriosis was never even in my vocabulary until a little over a year ago, even though I have dealt with painful periods for 25 years. Now multiple TVUS, MRI, CT...

Hi my name is Kate. I'm 37 and was diagnosed with Deep infiltrating endometriosis a week ago. My story is a bit long because it took such a long time...

When I was 15 I was "diagnosed" with endo by my GYN at the time. She diagnosed me based off the fact that my grandmother and mother also had endo...

When I was 14-15, I struggled. Then the pain was only during my cycle and the two days before. I would vomit from the pain and refuse to get out...

Hi, my name is Dani. I was 11 years old when I first got my cycle, and I always remember it being very painful. Like most of us, I too...

I just am happy to have a place to share my story. I started at 11 and was always irregular but in 2012, my whole life changed slowly. I was...

Surprisingly, I don't remember my first period, which happened when I was twelve, as being painful. I only vaguely remember waking up with a blood stain on my underwear and...

I am a woman and because of that, I have to deal with a menstrual cycle or period if you will. This is a perfectly normal and healthy thing for...

Life is lived in seasons. There are seasons of plenty, and there are seasons of want. There are seasons spent dancing with joy and seasons huddled in sorrow. I am...

Diagnosed at a young age, and after 30 years, I finally found a happy Medium. When I was 17/18, my gynecological surgeon lamented that he couldn't do a full hysterectomy...

I finally had a doctor believe me that I have pain every day. I started telling doctors about my symptoms when I was 16. I'm now 36. It took 20...

My periods were always painful and heavy. Once I hit 15 though, it got to the point that I could no longer handle it. At 16 I was diagnosed and...

I was diagnosed with endometriosis at age 17 and am now 18. It has been difficult to keep up with my school work because of the pain and I do...

My Endometriosis pain started in my Teens. I was diagnosed in my early 20's after lab work and my first Laparoscopic surgery. We were trying to start a Family with...

In honor of Endo awareness month I want to re share my endo story. Here is my life. I was 13 the first time I had a “bad cramp”. From...

I got my first period when I was in 5th grade. I was 8 years old. 8. I thought I was dying. I was in so much pain I cried...

I remember it took me years to finally get over my depression and finding a way to fight my pain. I was diagnosed with endo about 7 and a half...

I got my period when I was 15. My mom knew something wasn't right so she took me to her OBGYN where they put me on birth control pills. For...

I was diagnosed at 38, I knew exactly what it was, but of course you never think it'll be me. Long story short, I was having ridiculous cramps, gyno doc...