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Endo Surgery Recovery

Hi, I would love to hear from anyone who has undergone endo surgery.
My sister recently had a laparoscopy for stage 4 endometriosis, as well as adenomyosis. In addition to this, she also got the coil fitted at the same time.
She is 3 weeks post op and is still experiencing quite severe pain, both in the incisions and period-like pain. Her surgeon said this shouldn’t be the case and that it is unusual.
As expected, this has left her feeling very worried and (once again in the endo journey) dismissed.
For anyone who has had the surgery:
Is there any reassurance you can give here? Maybe share your experience of recovery and whether you were still in struggling with the pain 3 weeks on.
I really want to show her that there are others who are going/ have gone through the same thing and that she is not alone. I hope to find community here to reassure her that everyone’s healing process is different.
Thank you in advance,
Ruby xx

  1. Hey , I'm so sorry to hear that your sister is still suffering with severe pain. I can imagine how disappointing this must feel for her. It's so frustrating to hear that the doctor let her leave with no answers! I've collected a few articles from our community page from other members who have written about their experiences after endometriosis surgeries. I hope they help to reassure your sister that she's not alone.

    What Not to Say to Someone After Endometriosis Surgery - https://endometriosis.net/living/after-surgery

    I Had Excision Surgery for Endometriosis a Year Ago. What Has Changed - https://endometriosis.net/living/excision-surgery

    How Surgery Recovery Went For Me - https://endometriosis.net/living/surgery-recovery

    What My Endo Surgery Was Like - https://endometriosis.net/living/surgery-story

    Please let us know if you have any questions! Sending warm and healing thoughts to your sister.
    - Kat (Team Member)

    1. thank you so much for getting back to me!
      These articles are exactly what I was looking for 😊

    2. Of course! Always happy to help <3
      - Kat (Team Member)

  2. Hi Kat,

    I am said sister haha! Your response is so helpful and I really feel reassured from the articles you shared. I am now 5 weeks post op and feeling much better than week 3.
    Thanks again and thank you for creating a safe place for endo women to feel a sense of community and togetherness. It’s beyond helpful.

    1. I'm so glad we could be a safe place for you during this uncertain time. It's great to hear that you're progressing in the right direction! Please know that we'll be here for you as you continue on your healing journey. Sending warm hugs!
      - Kat (Team Member)

  3. I had a similar fear after my own surgery. Recovery can feel so unpredictable and I remember getting worried when my pain wasn’t settling as quickly as I expected. At around 3 weeks I was still dealing with discomfort too. It’s really hard when u already feel dismissed through this whole journey 🙁 Hope your sister feels a little better soon and gets the support she needs!

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