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Read conversations, start a discussion, and connect with others about endometriosis.

Has anyone heard of endometriosis appearing on the perineum?

Has anyone heard of endometriosis appearing on the perineum? Can be felt under the skin. Doctor stated that is what he is classifying it as endometriosis as of right now...

Endo, IBS or PID?

I live in the UK where the healthcare system is variable. I haven’t had any joy with a GP as of yet and I can’t afford to go private. I...

Can you have endo, though a diagnostic lap does not show signs of it ?

Hi I have had excruciating pain over the last several years but had nothing done about it til last year as it is very on and off where as last...

Undiagnosed and struggling. Help!

Hi all, I am pleased to have found a community who support one another and truly understands this debilitating condition. I myself am just getting the ball rolling with my...

What is one thing you wish others knew most about endometriosis?

Please help reveal the truth about the real pain and symptoms of living with endometriosis! What is one thing you wish others knew or the most misunderstood part about endo?...

Endo and pain management

Hey all, I've been diagnosed with Endo for 6 years after two emerg trips with mysterious abdominal and pelvic pain that had no other identifiable medical reason. They ruled out...

Starting conversations with friends

Endometriosis affects 1 in 10 women yet it seems like it isn’t really talked about. Is it just me or is that the case? Have you talked to your friends...

Will you take our In America survey to help reveal the true impact of endo?

1 in 10 women are affected by endometriosis worldwide. Every year, we conduct the Endometriosis In America survey to learn more about this challenging condition, and how it impacts daily...

Pain after laparoscopy

It’s been a over a week now after my laparoscopy surgery to diagnose Endo. Prior to my surgery I was feeling okay, and after the normal pain. Now a week...

Would you need to stop taking hormone blockers before surgery?

I am hoping to see an endo specialist in May, but my OB prescribed Orilissa to help with the pain and minimize growth of endo while I'm waiting because of...

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