I've been diagnosed with Endo for 6 years after two emerg trips with mysterious abdominal and pelvic pain that had no other identifiable medical reason. They ruled out appendicitis. Kidney stones. X ray, blood work, ultrasound, pelvic exam. All the fun stuff. I was referred to a local gyno that mentioned -- still -- that maybe the cause was kidney stones, but prescribed me BC to see if it would take my constant pain away. The pill didn't work, so I was switched to a depo Provera injection every 3 months. She said she was fairly confident it was endo once my pain went away with this treatment.
Since then I've been mostly pain free for about 4 years, but I've discovered that my pain is coming back earlier and earlier. Usually I'll have a week or two period where my pain will return and my injection date is nearing. Now it seems to be coming even earlier than that -- a month early.
Wondering how any of you deal with your endo pain and if you could share anything that has helped you? Do you take bc/hormone therapy? Does it work? Only sometimes? Whi has helped you manage your pain?
The pain can be so discouraging and isolating. Sometimes I feel like I'm not "doing enough" to keep it manageable. It feels like an uphill battle. If my injection stops working, my next likely step will be surgery.