Latest in the Community
Hello, @liliana1997! How are you today? – Pam (Team member)
I just am happy to have a place to share my story. I started at 11 and was always irregular but in 2012, my whole life changed slowly. I was on my period from 2012 to 2017 with not even a day break. I went to […]
Surprisingly, I don’t remember my first period, which happened when I was twelve, as being painful. I only vaguely remember waking up with a blood stain on my underwear and having my mother teach me how to put on […]
@trish08 That’s good to hear – Jessie (team member)
@Callie.King thank you so much for sharing your experience with us. Like many endometriosis patients, your symptoms started when you were so young, I am so sorry about that. Yoga also helps me a lot with my symptoms, and meditating keeps my anxiety at bay. Living with endometriosis is an every day practice. And you seem to be a master at it 🙂 -…
Hi @yvette01, thank you so much for sharing your story. Endo is so devastating and I can imagine it is hard to get your head around having a hysterectomy, particularly if you don’t have any kids yet. Also devastating to hear you can’t have kids…
Oh my goodness, @redheadgirl84, you have had a horrible time of it! That is just so devastating to hear, and yet so common. We women always get told that our cramps are “normal”, even though we know they aren’t, or that the pain is all in our head. I am so happy that you prevailed and finally got a diagnosis, even if the endometriosis had already…
Yes, if there’s one thing I have accepted and I am happy with, is my ability to share my own experience, so others don’t have to suffer what I did. Your words are so inspiring 🙂 – Jessie (team member)
Hi @callie-king, thank you so much for sharing your story. You are so right: endometriosis does look different for every woman, and all women respond different to treatment. I am so happy to read your positive words, it is great that you are able not to have endometriosis bring you down. It is also wonderful that you have found ways to minimise…
Hi @vtracy21, thank you so much for sharing your story. It is abysmal that it takes women 20 years to get a diagnosis. We are so often told the pain is in our head.
Hi @katiegs2001, thank you for reaching out. While it is encouraging that you have a diagnosis for your pain, it is never easy to be told that you have endometriosis. Jessie has already provided you with some helpful links on how to combat the pain through diet and natural therapies. Hopefully these will help you too.
Hi @jojop18, what a lovely story! I, too, was told my endometriosis would make it hard, even impossible to conceive and I now have two children. Thank you for sharing your message of hope!
Christina (team member)
Okay, so let’s talk periods.
I am a woman and because of that, I have to deal with a menstrual cycle or period if you will. This is a perfectly normal and healthy thing for a woman, however, it is not always a […]
Thank you so much for your comment, Jessie! I have a lifetime of experience with this disease, and I truly hope that anyone struggling with a new diagnosis can learn some of the lessons early on that it took me a lifetime to learn. I finally feel like I have control of my health, and I owe that, in large part, to my excellent healthcare providers.…