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Endo Warrior commented on the post, Hysterectomy & Weight Loss 41 minutes ago

Hi @ewalton38, I had a hysterectomy at 39 myself because nothing was managing my pain effectively. Following the hysterectomy I didn’t really lose any weight and whatever I lost I’ve gained again (three years later). I think every woman is different and experiences the loss of their uterus differently too.
Good luck if you decide to have a…

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Endo Warrior commented a story 44 minutes ago

@devonn80 Thank you so much for sharing your story with us. I’m so happy you have finally been able to get treatment, it’s shocking how long it takes to get diagnosed!

I’m glad you now see a good pelvic pain specialist. The hysterectomy should help with the endometriosis, especially if the surgeon also removed all remaining endometriosis in the…

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Jessie Madrigal commented on the post, What Is A “Normal” Period? 1 day, 18 hours ago

@freda I am so sorry you are struggling so much. The first thing I must say, is that if your doctor is not being supportive enough, you have every right to look for a different one. You deserve a health professional who will listen to you, support you and provide you with the best personal care. I am also including some links on how some of our…

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Jessie Madrigal commented on the post, Understanding Thoracic Endometriosis 1 day, 23 hours ago

@bh0108 thank for you commenting and sharing your experience with us. It’s so disappointing to hear of doctors that laugh at their patients, it just makes me so angry! I hope you can find a doctor that is more supportive and that you can get some effective relief. In the meantime, we are here for you – Jessie (team member)

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Jessie Madrigal commented a story 1 day, 23 hours ago

@devonn80 thank you for sharing your story with us. It’s incredible how it keeps taking so long for endometriosis patients to be diagnosed. But I am happy to hear that you are on the road to recovery and have been able to have 4 healthy children 🙂 – Jessie (team member)

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devonn80 shared a new story 2 days, 10 hours ago

Endometriosis was never even in my vocabulary until a little over a year ago, even though I have dealt with painful periods for 25 years. Now multiple TVUS, MRI, CT and 2 surgeries later, I no longer have a uterus […]

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FREDA commented on the post, What Is A “Normal” Period? 6 days, 15 hours ago

I had endometriosis that was severe and had a hysterectomy at 24 years old. I am 69 years old and have pelvic pain that is very severe and also I have FACTOR 5 blood disorder. That makes me unable to take hormone therapy.
My husband is 6 years younger than I am. In the last 8 months I am not able to have sex with him due to pelvic pain and…

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ikelen posted a new activity comment 1 week, 2 days ago

Hello Jessie ! I missed this community and I’ll try to be more active on here 😊

I feel you, I was in so much pain for 2 days after the session and so tired (I took 3 naps yesterday and still slept 11 hours at night) ! But I have heard it’s normal. Today my pain subsided and I feel light ? I hope it stays that way. I’ll keep you all…

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Jessie Madrigal posted a new activity comment 1 week, 2 days ago

Hello @ikelen, so great to hear from you! I did osteopathy for a while, and interestingly, it always made me feel quite ill after the session. But I was told that was completely normal. I hope it can provide you with some relief, after the flare-up subsides. Please keep us posted – Jessie (team member)