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Endo Warrior commented a story 1 day ago

Hi @emmannuelle, thank you for sharing your story with us. Sadly, it is not uncommon for it to take this long to be diagnosed. It took me 15 years to get a diagnosis – like you, I was told that my pain was normal.

You are right that speaking up about endometriosis and raising awareness of this disease will hopefully help other women get a…

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Endo Warrior answered a question 1 day ago

Hi @kate,

That is so frustrating that your doctor doesn’t want to give you a laparoscopy. A laparoscopy is the only reliable way to diagnose endometriosis, so it would definitely be worth getting it. I hope you can find a doctor who is willing to perform a laparoscopy.

I had one laparoscopy to diagnose and treat the endometriosis (unlike…

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Kate commented a story 3 days, 20 hours ago

Hi Jessie, thanks for your helpful response to this and to my other question on laparoscopies as well. I’m going to get another opinion from another GYN next week, I’ll ask her about specialists and be sure to check out that forum, too. I think joining this community and checking out other people’s stories will help me maintain a more posit…

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Jessie Madrigal answered a question 3 days, 21 hours ago

Hello again @kate 🙂

I’ve had two laparoscopies. First one was just to diagnose, and frustratingly, because the surgeon carrying out was not an expert on endometriosis they didn’t touch any of my adhesions. The second laparoscopy was done by a specialist. They removed all of the adhesions and they unstuck the organs that had glued to each oth…

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Jessie Madrigal commented a story 4 days ago

Hi @kate, thanks for sharing your story with us and reaching out. It sounds like you’ve been through so much. The issue with having or not having endometriosis is that it can only be properly diagnosed through a laparoscopy. Any tests based on imaging may prove fruitless because some adhesions occur at deeper levels, or are hidden behind organs, w…

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Jessie Madrigal posted a new activity comment 4 days ago

Hi @teapotmoon! I hope this gives you some relief. Finding the thing that works for you can be a bit of a journey. With endometriosis, there are definitively no one-size-fits-all solutions, annoyingly 😉 I’m keeping my fingers crossed for you! – Jessie (team member)

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Kate shared a new story 4 days, 17 hours ago

I’ve had a long and annoying history of reproductive health issues. I got my first period at 9, I’m now 22. I’ve always had painful and heavy periods. On some months, I’ll get a bout of cramps so bad that I’m dou […]

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alesandrabevilacqua commented a story 4 days, 20 hours ago

Hi, @emmannuelle! Thanks so much for sharing your story with us. Wow, to wait nearly 20 years to hear this news and receive a diagnosis. Can’t even imagine that feeling. Acceptance is part of the journey, and I’m hopeful it will come for you in time. In the meantime, feel free to continue browsing around our site for similar stories, articles, and…

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Emmannuelle shared a new story 5 days, 13 hours ago

‘Endometriosis.’ Usually, I have to repeat it twice, because most people have never heard about this disease. Strange, if you consider 1 out of 10 women suffer from it. (which is approximately 176 million wom […]

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Jessie Madrigal posted a new activity comment 6 days ago

I am sorry you are having a tough time at the moment @mylifewithendo, I hope things improve soon and you get some relief. What I know from my own experience with this disease, is that no matter how dark it gets, the bad times never last. Better times will follow. I hope you know you’re not alone in this. – Jessie (team member)