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Shyhippie shared a new story 1 hour, 16 minutes ago

I just am happy to have a place to share my story. I started at 11 and was always irregular but in 2012, my whole life changed slowly. I was on my period from 2012 to 2017 with not even a day break. I went to […]

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ikelen shared a new story 1 hour, 30 minutes ago

Surprisingly, I don’t remember my first period, which happened when I was twelve, as being painful. I only vaguely remember waking up with a blood stain on my underwear and having my mother teach me how to put on […]

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Jessie Madrigal commented a story 1 day, 14 hours ago

@Callie.King thank you so much for sharing your experience with us. Like many endometriosis patients, your symptoms started when you were so young, I am so sorry about that. Yoga also helps me a lot with my symptoms, and meditating keeps my anxiety at bay. Living with endometriosis is an every day practice. And you seem to be a master at it 🙂 -…

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Endo Warrior commented a story 3 days, 2 hours ago

Hi @yvette01, thank you so much for sharing your story. Endo is so devastating and I can imagine it is hard to get your head around having a hysterectomy, particularly if you don’t have any kids yet. Also devastating to hear you can’t have kids…

I had a hysterectomy at age 39, although my circumstances were slightly different in that I was…

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Endo Warrior commented a story 3 days, 2 hours ago

Oh my goodness, @redheadgirl84, you have had a horrible time of it! That is just so devastating to hear, and yet so common. We women always get told that our cramps are “normal”, even though we know they aren’t, or that the pain is all in our head. I am so happy that you prevailed and finally got a diagnosis, even if the endometriosis had already…

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Jessie Madrigal commented a story 3 days, 9 hours ago

Yes, if there’s one thing I have accepted and I am happy with, is my ability to share my own experience, so others don’t have to suffer what I did. Your words are so inspiring 🙂 – Jessie (team member)

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Endo Warrior commented a story 3 days, 17 hours ago

Hi @callie-king, thank you so much for sharing your story. You are so right: endometriosis does look different for every woman, and all women respond different to treatment. I am so happy to read your positive words, it is great that you are able not to have endometriosis bring you down. It is also wonderful that you have found ways to minimise…

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Endo Warrior commented a story 3 days, 17 hours ago

Hi @vtracy21, thank you so much for sharing your story. It is abysmal that it takes women 20 years to get a diagnosis. We are so often told the pain is in our head.

I feel what you are saying, that you wished you had pushed more for treatment, diagnosis, but that’s the job of a doctor. The long journey to diagnosis is because doctors don’t…

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Endo Warrior commented a story 3 days, 17 hours ago

Hi @katiegs2001, thank you for reaching out. While it is encouraging that you have a diagnosis for your pain, it is never easy to be told that you have endometriosis. Jessie has already provided you with some helpful links on how to combat the pain through diet and natural therapies. Hopefully these will help you too.

Do keep an eye on your…

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Endo Warrior commented a story 3 days, 17 hours ago

Hi @jojop18, what a lovely story! I, too, was told my endometriosis would make it hard, even impossible to conceive and I now have two children. Thank you for sharing your message of hope!
Christina (team member)

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Callie.King shared a new story 3 days, 20 hours ago

Okay, so let’s talk periods.

I am a woman and because of that, I have to deal with a menstrual cycle or period if you will. This is a perfectly normal and healthy thing for a woman, however, it is not always a […]

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KimberlyStelly commented a story 3 days, 23 hours ago

Thank you so much for your comment, Jessie! I have a lifetime of experience with this disease, and I truly hope that anyone struggling with a new diagnosis can learn some of the lessons early on that it took me a lifetime to learn. I finally feel like I have control of my health, and I owe that, in large part, to my excellent healthcare providers.…