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Recently diagnosed, now on Mirena, in extreme pain for 2 weeks

  • By susieq

    Hi! I am new to the diagnosis of having endometriosis, though I am 33 years old (only took 20 years!). I was on birth control which stopped my menstrual cycle for several years, but then when that made me unwell, I stopped a year and a half ago. Since then I have an “episode” of 10/10 level pain every month, sometimes twice a month (with a span of about 2-3 days in between episodes. I had an IUD administered (Mirena) on December 3rd, and have been in pretty bad shape since. I have been in the hospital twice, but no ultrasound, no laproscopy, no anything really to help me understand if I’m doing ok or if there’s something wrong. I imagine I’m probably ok, but it’s very scary to keep going through this for so long. I don’t want to keep going to the hospital. Is this an experience other ladies here have shared? Does it sound familiar, and were you ok? Is there anything I should think about doing to take the next step, or is it normal just to have to wait this out? I had my first full-blown panic attack the other day during an episode, and it felt like I was going to choke to death. I’m scared, to be honest, it’s a very vulnerable feeling to be like this. Any support/advice would be wonderful.

  • By ploveday

    I got the Mirena inserted December 4, 2019. Since then I have had major spotting and massive pains. Just this weekend I was treated for a UTI. I haven’t had a UTI in over 10 years. Other than the Mirena device and an ultrasound looking for the device, I have no clue what would cause the UTI. I know that does not answer your question. But, I can say you are n alone in feeling concerned. I am going to my Gyno to see what he can do for me.