I am 32 years old and have been diagnosed with endometriosis since age 14. At age 19 I had several laparoscopies to deal with the addhesions as well as scar tissue (I have had other abdominal surgeries due to other health issues and I have a very large amount of scar tissue...pretty much everywhere) and an reconstructive surgery. At that time, my doctor tried to preserve my fertility and I had a second set of laparoscopies and another reconstruction around age 25.
My endometriosis is genetic, my grandmother and mother both had it and mine is (according to the doctor) more severe than theirs. They both had complete hysterectomies before age 40 (my grandmother in her 20s and my mother in her early 30s).
I have just gone to see a new doctor and he would like me to learn a bit about Orilissa and Lupron before I decide on whether I want a hysterotomy.
Does anyone have any experience with either of these drugs? I am planning on going through with the hystorectomy as soon as I get a call from the pelvic pain specialist I'm being referred to but I wanted to do as the doctor asked in the meantime. From my understanding, neither of these drugs are meant to be taken for longer than 2 years and I haven't had a good track record with any kind of medicine for this. Every drug I've been given has failed and only made things worse.
My husband and I are going to be starting Foster to Adopt so I am anxious to get things settled before a child is placed in our home because I can hardly function with the endometriosis. It causes me to miss work/get sent home early and when I am home I have no energy which isn't conducive to having a kid!
Any help would be greatly appreciated! Thanks!