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Nerve pain

Hi I'm new on here. Has anyone experienced nerve pain from endo please? I'm taking Pregabalin for nerve pain in lower back. Think nerve is being aggravated by retroverted uterus, stuck with possible scar tissue. Thanks x

  1. looking forward to this thread, my mom faces the same issue.

    1. nice to hear I'm not alone, but sorry your mom has similar issue x

    2. hoping you get some advice for your momma <3 Saddened she deals with this as well. Sending you both big hugs. -Kimberli (team member)

  2. 100%! In fact, I started losing mobility because of pain in my left leg at the end of 2020 and into 2021. I had surgery last May with a surgeon who had experience with sciatic and sacral nerve endo. He found endo "dangerously close" (his words) to my sacral nerve and excised it. I've had sciatic pain for at least 15 years and not one doctor had thought to connect it to was my own research that led me to ask that surgeon about it. Now my sciatic pain, back pain, and leg pain are back and I have a consult booked at the end of next month to see if he would recommend another surgery.

    There is also documentation of endo on the spine.

    I'm guessing you've already talked with your doctor and they recommended the Pregabalin? Is it helping?

    ~Katrina, Advocate

    1. I do experience some nerve pain but haven't connected it with endo or really even found what's causing it. So, thank you for asking this question. Definitely looking forward to seeing responses and getting some advice. I am so sorry you deal with this type of pain as well though. It is nice to know we aren't alone in this. Have you found Pregabalin to be helpful for you at all? -Kimberli (team member)

      1. Have you tried a nerve block? You can usually get it from a PMR or interventional radiologist. I had a hypogastric plexus nerve blick before that resolved pelvic pain. You might need to target a different nerve plexus. But ask your doctor about it. It's a day procedure that can be completed in an hour.

        1. This is so interesting! Thank you for sharing with us and the community! Definitely good to know and something to look into for sure! Also, so happy to hear it had helped with your pelvic pain! -Kimberli (team member)

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