caret icon Back to all discussions

Hysterectomy? Is it worth it?

Hello everyone! So I've struggled with endometriosis since age 9. I got my first period at age 9. and then didn't bleed anymore but every month i experienced excruciating cramps. i didn't start bleeding again until age 11 but the cramps never went away. For years i thought this was normal. I was diagnosed with endometriosis officially at 25 but again thought nothing of it i have lived with this pain so long that ive just learned to manage with the pain and developed a ridiculously high pain tolerance. I've also experienced terrible stomach pain for the past few years and i mean absolutely horrible itll last a few days and then be gone and ive gone through GI docs and no one can ever find whats wrong. Well come to find out that can be a symptom of endo. Im 28 now with 2 biological kids and 2 amazing step daughters. I am 100% done with having kids. My doc actually suggested a hysterectomy i was both shocked and relieved. but i wanted to know do you ladies think its worth it will it help? or????

  1. This is a really good question! The decision to get a hysterectomy is such a personal one. And it affects everyone in different ways. My doctor, an endometriosis specialist, told me getting rid of my uterus would likely help with my worst period pain. But he said there's no way to know if it could make my stomach issues or other endo-related issues go away. I've decided to keep my uterus. But here are some stories from other community members that may help. Wishing you well! - Keri (team member)

    https://endometriosis.net/living/story-hysterectomy

    https://endometriosis.net/living/hysterectomy-stories

    https://endometriosis.net/clinical/hysterectomy-when

    https://endometriosis.net/living/why-hysterectomy

    https://endometriosis.net/living/my-hysterectomy-recovery

    1. Hi , Keri left you some really great words and articles. I completely second her that the decision to get a hysterectomy is a deeply personal one. I also wanted to leave this forum page for you where other endo community members have discussed the different surgeries they've had, including hysterectomies, for you to check out. Please feel free to comment there and ask them what their thoughts are/were about all of it. I hope that helps and I will be keeping you in my thoughts. We're always here for you if you ever need a little bit of support or love! 💛 Warmly, Kayleigh, Endometriosis.net team

      or create an account to reply.