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Hysterectomy Questions

I was diagnose this past summer with endometriosis. I had a hysterectomy but i still feel the same. I don't know what else to do. I'm constantly sick I only get a week out of a month that I feel ok. It's just so much pain and fatigue. Has anyone got a hysterectomy done and still feel the same way no change not even a lil.

  1. Hi , I'm sorry you aren't finding any relief after your surgery. I can't imagine how frustrating that must feel. I hope some community members will chime in with some personal experiences, but in the meantime, another community member inquired about something similar and I thought you might be interested to read the responses: https://endometriosis.net/q-and-a/can-endometriosis-reoccur-after-a-total-hysterectomy/

    Also, one of our advocates, @fmtima, wrote an article "the truth about my hysterectomy" that I thought you might find interesting. https://endometriosis.net/living/my-hysterectomy/

    Please know that we're here for you and thinking of you. - Pam (team member)

    1. yes, it’s just so hard. I live in a city and doctors are booked months in advance.

    2. I'm sorry

  2. Hello I haven’t had a hysterectomy, but I’ve had two surgeries to treat my endometriosis. My surgeon always reminds me that it can take up to 6-8 months to feel any changes. Just like Pam advised, feel free to have a look at the articles on the subject, but also check out the facebook comments under those posts, as many fellow endometriosis patients shared their experiences after having a hysterectomy. Stay strong and do reach out if you need help - Jessie (team member)

    1. Thank you ladies I appreciate all the help and concerns. I'm here for all you ladies as well.

      1. Hi ! Just wanted to check in on you and see how you have been feeling/doing? Hopefully well! -Kimberli (Team Member)

    2. I'm so sorry you're going through this. Endo is a curse, a very painful experience. Moreover when it comes to having kids..Ladies often turn to ivf when suffering from endo. Unfortunately I cannot answer your question but I hope things have got better for you so far.

      1. I appreciate that but I have moved on from trying to conceive and do IVF. Focusing solely on my health has been very good for me emotionally. I still mourn the child I’ll never have but at least I don’t have to plan around a future I’m not sure I’ll have or put my life (and my husband’s life) on hold.

      2. It's so good to hear that focusing on your health has been emotionally good for you. I completely understand the need to mourn and I hope that you have a support system in place to help you there when you need it. You have us and our support whenever you need it. We'll be here for you, thinking of you and sending all the good vibes your way. 💛 Kayleigh, Endometriosis.net team

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