Upcoming hysterectomy & terrified
Hi everyone,
I have been in horrific pain on & off since October 2022. I have bilateral cysts on ovaries, fluid in my fallopian tubes, fibroids on my uterus, right ovary & tube attached to the uterine wall that can’t be seen easily on scans, adhesions throughout my entire pelvic region & more. I finally got into to see an Endo specialist in March 2023. She recommended a complete hysterectomy, removal of ovaries & fallopian tubes, plus removal of as much if not all adhesions. I had to see a colorectal surgeon because the right side of my uterus is tethered to my colon. He will be on standby in case the Endo specialist needs him. To quote the specialist I’m so diseased from the Endo. The earliest from March to have surgery has been June 30th, but now that I am 12 days away I’m completely terrified. Terrified of the anesthesia, the robotic laparoscopy, the pain after the procedure while healing & the thought of what if she isn’t able to get all of the scar tissue & Endo continues to cause problems. I’m hoping to find some support & reassurance that everything will be okay. I feel so alone. Thanks in advance.
Hi,
I had a hysterectomy two years ago. It is very important to have a doctor that you trust. Fortunately, I had a doctor that took great care of me and answered all of my questions. They left my ovaries in place, but they removed everything else including my tubes and cervix. If you go through with the surgery, be prepared to stay on your feet for the full 6-8 weeks. For me, it took longer. It is major surgery so be sure to get enough rest afterwards….I cannot stress that enough. I had to be sure I had enough rescue medicine and a good heating pad because I had more nerve pain (although everyone is different)Also, if you have someone to help you out around the house (post-surgery) that would be real important. Everything that you are feeling is normal. I was so nervous before my procedure. I also had a colorectal surgeon on hand to help my OBGYN during my surgery which was scary but necessary. I have had one more surgery since then, so, unfortunately my endometriosis grew back. Let me know if you have anymore questions. I hope this helps you out some ❤️🩹 Thinking of you! -JazminI have a really good surgeon that has gone over everything with me, but along with the pros there’s the con’s. My brain is functioning on the con’s & not any of the pros. I know I need the surgery, actually I’ve needed the surgery for a few years. Finally, I have a doctor who has listened & is willing to help me. How soon were you able to get up & walk? I’ve heard sooner the better. Any suggestions on how to do that with the least amount of pain? I will definitely not do anything I shouldn’t & just rest. If you can think of anything else that may be helpful please let me know. I really appreciate you responding.
Sherri
Thank you@endo-warrior2020. I will let you know if I have any questions. Right now I’m overwhelmed thinking about everything.
Of course, You are very welcome. I was able to walk after a few days, however, they did provide me with a walker to help me get around the house. My house has a lot of stairs, so the walker really came in handy. I was in the hospital for about a week, but I had to start walking when I got home. Some tips: if you have pets (especially dogs) it might help if you could get a family member or friend to help you walk them. I have two dogs and I couldn’t walk them at the park for awhile after I had my hysterectomy. Also, one more thing…it will help if you could prepare your meals and do laundry ahead of time so that you don’t have to do it when you have the surgery. I am so glad you have a doctor that you can trust. I recently moved out of state and had to start over. Good doctors can be hard to find…wishing you the best! Also, it might help to have your favorite shows and movies recorded. Someone told me that when I had my hysterectomy…it was good advice because I was in bed for longer than the full 6-8 weeks. Or, have your favorite books with you so you can catch up on your reading, if you’re not into watching tv. Things like that can help when you’re recovering from surgery. If you have any other questions, let me know. I wish you the best. -Jazmin
